Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Fed Up

  • Please log in to reply
5 replies to this topic

#1 JG07


    Senior Bronze Member

  • Members
  • PipPipPip
  • 49 posts

Posted 28 June 2007 - 06:44 AM

I have been battling sever dismotility for the past week - doctor prescribed heavy duty relief -ugh - I am so angy about all of this - I wish there was some one to sue - lets face it - the doctors missed it for so long that I am in much worse shape than I could have been - I am sure it will go nowhere - I am still trying to get disability -

#2 Sam


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 639 posts
  • Location:Delta, Ohio

Posted 28 June 2007 - 08:20 AM

JG07, take a few deep breaths, and just calm down. We are here for you. I'm sorry to hear you are having problems right now. I to am waiting to get on disability. Im' been Fed up today too, but for different reasons. I hope you feel better when you get this, Take care, Sam

#3 Elehos


    Silver Member

  • Members
  • PipPipPipPip
  • 196 posts
  • Location:Upstate NY

Posted 28 June 2007 - 09:02 AM

Hi JG07,

A lot of us have been in the same situation, and it only took the doctors from 1982 until 2006 to order an ANA blood test for me! I do understand the feeling that you either want them in court or with their head on a platter, but being angry sets off even more flares. I'm sorry that you've also been overlooked like this, and do hope the anger calms down for your health's sake. Disability is another matter, but be persistent; sometimes it takes far longer than we want to get all the doctors to send necessary paperwork to the SSA, and quite often we have to do the legwork of getting it for them. In the meantime, I hope the meds work so that you have something positive going on to help out.

Best wishes to you,

#4 Sweet


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,895 posts

Posted 28 June 2007 - 12:10 PM

Hey JG -

I'm so sorry to hear of the rough time you are having right now. I know that when I'm having a particularly hard time, it's difficult to not lash out to someone.

Vent to us, we are here for you!
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#5 emmie


    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 319 posts

Posted 28 June 2007 - 04:12 PM

Hi JG,

Someone once said two things to me during a bad time I was having:

1. breathe
2. tie another knot and hang on

So sorry you're going through this. Positive thoughts from me to you.

xoxo emmie

#6 jefa


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,284 posts
  • Location:Scotland

Posted 28 June 2007 - 09:27 PM

Sorry to hear you are so frustrated by your dysmotility problems, JG. It is something which would get any of us down. I have two links which may provide helpful to you. The first is our page on Emotional Adjustments and the second is the page on Gastrointestinal Involvement, with a large section of links on Dysmotility Syndrome. Hang in there, Sweetie.
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)