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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 ShawMJ

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Posted 28 June 2007 - 06:54 PM

Hi all went for my scheduled appointment with my internist yesterday and for the most part it was good.My chest x-rays were clear,osteoporosis hasn't worsened,and my blood sugar and cholestereol,triglycerides were all good! Being that I never could do the pft he didn't ask me to repeat it.Trouble is I have to take another barium enema,apparently it wasn't clear enough.This time his nurse told me a couple of tips to use in the colyte- I can put unsweetened kool-aid as long as its not red color as then it would show up looking like blood.She also gave me a paper with some pills to take every four hours with the colyte.I told her I wish someone had done that last time! As for my horrible heel,ankle pain he said it was sd related (duh) but that he prefers I go see my rheumatologist as I don't seem to get any relief from the pain there and everywhere else! Also I had 'terrible red eyes"seriously they were so bloodshot it looked like I was on a hangover.no pain just woke up one day and there it was and thats also sd related he said but I did get an appointment to see a eye dr.in October.Its all gone now all of the redness and watering has stopped just as fast as it started! So I see him again as soon as I do the barium again.I'm happy about all the other results especially the blood sugar as diabetes was how I lost most of my family and I'dhate for both me and my husband to have it.The cholesterol etc too,as two years ago I was taking meds for that and now its good,so that pleased me tremendously.Less medicine to worry about! Well I hope all of you are haning in there day by day I'm looking forward to the weekend and a haircut.Boy the little things that can make us happy! In my case a haircut always makes me feel a bit better.Take care all and SMILE.Mary-La.

#2 jefa

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Posted 28 June 2007 - 09:03 PM

Another appointment behind you, with relatively good news. Sorry you have to go through the barium enema again. How long is it till your next rheumatologist appointment? I am just thinking about your heel and ankle pain. Enjoy your haircut. Yes, the little things are important. Perhaps you can combine the event with a lunch out or a bit of retail therapy. :)
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
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International Scleroderma Network (ISN)

#3 Sweet

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Posted 29 June 2007 - 04:22 AM

Hey Mary!

I'm really happy that the majority of your tests came back good! But so bummed (no pun intended) that you have to have the barium enema again. Ugghhhh I had one once and I hope it is my last.

Please keep us posted as to those results.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 nan

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Posted 29 June 2007 - 08:42 AM

Great news! I am just sorry you have to do the Barium Enema again. I agree with Sweet. I did it once and I hope never to have to do it again.
Nan

#5 WestCoast1

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Posted 29 June 2007 - 02:27 PM

Mary-La,
So glad to hear about your successful apt. I am sure that it can be a bit dissapointing to get ANY bad or stressful news, but for the most part, it sounds like things are goin okay for you. I think a haircut is always a mood lifter...good luck with that.
*WestCoast*

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#6 emmie

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Posted 29 June 2007 - 05:08 PM

Hi Mary,

Good job getting the cholesterol, blood sugar, and triglycerides down. That is great! Quite a mystery on your eyes, huh? I hope your rheumatologist can help you get some relief with your feet. Mine are quite painful when I am off of them for a while, but ease up after I am on them for a bit. Good luck with that. But even more, good luck with the barium enema....eewwww. I think everybody hates them. It sounds like you got some good tips that might help. Let us know how it goes and your results when you get them.

xoxo emmie