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Biomarker for Diffuse Scleroderma skin has been discovered!


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Off To Another Doc


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#1 Margaret

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Posted 30 June 2007 - 01:09 AM

Hi Everyone~~~

Gareth had an abdominal ultrasound done Thurs for his 'hard stomach' and chronic abdominal pain to r/o gallbaldder stones, etc. Well, the good news is there were no stones and the gallbladder looks fine. He will have the HIDA scan on Mon to confirm that the gllbladder is OK. The bad news is the ultrasound showed hydronephrosis of both kidneys. I googled that with scleroderma and came up with 10 pages of reading matter. BUMMER....... His primary care physician said to take him to a nephrologist and get it checked out. That may be the reason for the 10 pt drop in his GFR last month. Anyone with kidney problems who started out this way with hydronephosis?

Take care, Everyone.
Margaret & Gareth.....he's watching me type!!!

#2 Sweet

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Posted 30 June 2007 - 05:01 AM

Big ole hug to you and Gareth!

So glad the gallbladder look good, but I'm sorry to hear about the possible other problem. Seeing the Neph is a great idea. I don't have any personal experience with this, but please do keep us posted.
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#3 WestCoast1

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Posted 30 June 2007 - 05:48 AM

Hi Margaret and Gareth,
You must be frustrated to have to see yet another doctor. I guess in a way it means fixing a problem and hopfully feeling better. Please do let us know how Gareth is doing.
*WestCoast*

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#4 nan

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Posted 30 June 2007 - 08:53 AM

Margaret,
I am so sorry Gareth has another problem. I have had no experience with the kidneys. I send positive thoughts your way.
Nan

#5 emmie

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Posted 30 June 2007 - 04:11 PM

Oh, Margaret. I'm sorry to read about this. I hate when one thing leads to another. I don't know anything about this, but will google it so I have a clue. I'll be thinking of you and Garth.

xoxo emmie

#6 jefa

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Posted 30 June 2007 - 07:17 PM

Good news about the gallbladder. Sorry to hear about the kidney issues, but I just had a quick google myself and at least it looks like hydronephrosis is treatable. Hugs to you and your family, Margaret, for all you have had to cope with.
Warm wishes,
Jefa

Carrie Maddoux
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