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Painful Feet / Curling Toes Anyone......

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#1 Donna


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Posted 01 July 2007 - 05:40 PM

Hello everyone !!

I was just wondering if anyone on the board has a great deal of trouble with their feet - I have been through just about everything, including shoes from a medical supply store, and it just seems like nothing helps.......

I just had mentioned in another post, last fall, I had gotten an ulcer on my one toe.....I also do have a bunion, and hammertoe (which anyone can get), but some of my toes look just like someone who has the curling fingers, just like my toes are starting to curl...

I do have problems with my hands, and get the start of an ulcer on my right index finger often, but as long as I tend to it right away, it doesn't get full blown...

Just am curious as to everyone's responses as to how SD has affected their feet, if it has..........Thanks in Advance........

Take Care..........Hugs.......Donna :)

#2 bawana


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Posted 01 July 2007 - 09:22 PM

Hi Donna

I've had feet problems from almost day one, Yes they can get very painful as well as alot of swelling. For a number of years I had to wear special insoles that you just slip into your shoes. The insoles are made for your feet, They do them up in physio mostly. Now I can get away without them as long as I wear certain shoes.
With the toes curling.....if you can get a nice foot rub, It not only feels good and soothing, but it'll help the toes because they are rubbed and stretched out.

Take Care

#3 RememberingToSmile


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Posted 02 July 2007 - 01:44 AM

How dreadful for you-

I had a lot of problems early on with my feet due to swelling, etc. but now my problems are more joint pain on the balls of my feet, toe sores, tendon fibrosis and only mild skin tightening.

To deal with my issues... I

- went up a half size in all my shoes and made sure the heels had the right fit (I lost all sensation on one of my heels due to problems/fibrosis with the achilles tendor.

- I bandage and treat any tenderspots on my toes before they turn into anything

- I walk in the therapy pool and do exercises to work out the balls of my feet. [Standard arthritis care that the physical therapist recommended.]

- I spend time at the gym everyday to stretch out the tendons, no matter how bad I feel that day. If I miss a day, some other trouble spot always emerges. I learned that the hard way.

- I take warm moisturizing baths at home. At that time I do series of exercises for both foot and hand tendons to help minimize contractures.

I love my physical therapist - she is no-nonsense, shows me what to do to prevent contractures and ensure flexibility and expects me to do it. I was lucky to find one who fit my personality.

I hope others post more ideas. Keep us posted.


#4 LindaP



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Posted 02 July 2007 - 02:28 AM


I am new to this list. I am also having feet problems. I have to do what we call the monster walk ( not bending your feet ) for quite a while in the mornings and when I manage to sit for a few minutes. I have had no ulcers yet but the pain is pretty bad.

Linda P.

#5 jefa


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Posted 02 July 2007 - 03:53 AM

Hi, Linda. Welcome to the ISN Sclero Forums. I am glad you found this wellspring of information and support. As you can see, no matter what the topic, there will be someone to jump in share.

I am well familiar with the monster walk. Donna, I also have the curling toes. It started on my right foot, now on my left. Bawana and RTS have both made good suggestions. I only wear shoes when I stand for awhile or go out. The rest of the time I keep on thick fuzzy socks (for warmth). I have a very soft pillow on my footstool, so I can wiggle my toes into it. On painful days, sometimes I use elastic bandages around a piece of foam I have cut to fit under the flat of my foot.which stretches the toes out. It isn't something you can walk around in too easily, but it seems to help.
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#6 Sweet


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Posted 02 July 2007 - 04:06 AM

Hi Linda!

Welcome to the Sclero Forums. I'm so glad you found us. I look forward to knowing you better. :)
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#7 peanut


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Posted 02 July 2007 - 04:34 AM

Hi all: I have painful feet. I've given up completely on heals and try to wear big comfy slippers if I'm going to be on hardwood or linoleum floors.


You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#8 Vee


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Posted 02 July 2007 - 04:37 AM

Hi Donna,

I've been thru the battery of special shoes too. My problem is that the fat pads on the bottom of my feet have disappeared and it is painful to walk or stand in hard shoes. I went to a specialty store in our area, intending to try some shoes which my dr. suggested I try. I was amazed at how hard they were, she told me that a lot of the medical profession wears them, but I thought they were too hard for me. So I looked around a little and they had a rack of shoes that have a slight instep, which is perfect for my sunken arch's. I originally bought them to replace my slippers. but they are sooooo comfortable,, I haven't taken them off since. (You can send me a private message for the brand name.) I wear them to work and I find I can stand much longer than I used to be able to. Shopping, and walking are easier, cause the toe area has a lot of room and I hate for anythiing to touch my toes, since I had my ingrown toenails removed. And of course, a professional foot massage once in a while. I agree with what someone said about rubbing and stretching out your toes. Like our fingers they need to be worked or they will stiffen up on us too.

Good luck in your search!
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee

#9 Elehos


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Posted 02 July 2007 - 05:13 AM

Hi Donna,

I can relate to all of the replies, and OW!! is about the only way to describe my feet for the past couple of years. Forget ever going barefoot again, but at least I can still waddle around. Monster walk, that's good! Dairy products set them off even more, and that was the culprit in my gout flares, so at least that much has been resolved. I wish I could say that it will all go away, but taking good care of my feet, just like doctors recommend for diabetics, is the best thing to do, and try your best to stretch and keep the tendons as flexible as possible. I'm SO sorry for everyone that has the foot pain!

Best wishes to all,

#10 Patty


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Posted 02 July 2007 - 10:22 AM

Hi Donna,

I feel for you. I have some foot pain but I am lucky that I have some days that I am pain free. On the days I am in pain, I do not want to walk because the pain is just too much, but how do you not walk with a 2 year old LOL. I am going to the Dr's the 19th so I have this on my list of things to ask her. If I get any good info from her I will send it your way.

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#11 barefut


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Posted 06 July 2007 - 03:09 PM

My feet have been giving me problems off and on for the past 9 years.

Recently they have started cramping up when I'm standing or walking. At last appt to rheumatologist she said maybe a potassium deficiency was to blame but tests came back normal so it's probably collagen playing havoc.

Does not seem to matter whether I wear shoes or not or what kind of shoes I wear. Stretching and massaging helps a bit.

Take Care,