Saw My Rheumy Today, Update
Posted 01 July 2007 - 07:06 PM
I had my rheumatologist appointment today, I haven't seen him in 4 months, since I started on the Plaquenil.
He feels the Plaquenil is working, my joints aren't so sore, my dry eyes have improved, even my gastro problems seem a bit better.
He was annoyed I weaned off the Prednisone so I could test for Cushing's Disease, so he wants me to finish my testing and go back on a low dose of Prednisone (7.5mgs) just to help me out with the rest of my pain.
I also mentioned to him about my insomnia. I am tired all morning until about 4pm and then I feel much better and am awake until midnight or 2am, and of course wake up exhausted.
Even if I go to bed early I just lie there unable to sleep. so he has prescribed me Amitriptyline at a low dose of 10mgs, he said it would help me to get my sleep cycle back on track and may help with my bad muscles aches/fatigue.
He did say it was an antidepressant too, but I am thinking I might need one anyway, I have been trying to tough it out, but have been crying spontaneously lately and my anxiety has been playing up, so I think it might be good.
I think a few others here are on it, how have you found it? I do hope it helps with my sleep and my muscles........just to feel rested and relaxed would be nice.
So I am to stay on the Plaquenil, restart low dose Prednisone once the cushing's tests are finsished (as long as they are normal) and also the Amitriptyline, I hope all that combination gets me feeling better.
I have to say I am a bit better on the Plaquenil, but I would love to feel like I haven't been hit by a truck some days.
He wasn't any help with my abnormal lactation (of course its not his field), and also discovered my estrogen was low (something my general practitioner didn't tell me) and also he rang the hospital where I had my Gastroscope and they told him I had Chronic Gastritis, pre-ulcer. Something I didn't know!!!
when I had the scope done they told me and my general practitioner that it was normal, but they did take biopsies and I guess they must have come back and my general practitioner didn't know, so that was interesting.......just keep on with the Losec I guess.
Okay, that is my big ramble, feeling a bit drained today.
Posted 02 July 2007 - 04:00 AM
Thanks for taking the time for the update. I'm really glad the Plaquenil seems to be helping you. I know it's done wonders for me.
I think you'll be very happy with the Amitriptyline. It's been used for many years successfully to treat both depression and insomnia. Sleep deprivation makes everything seem so much worse (trust me I know this first hand!!!) so I hope after a few good night sleeps you will regain a bit of your energy and stamina.
Take care my friend.
Posted 02 July 2007 - 04:32 AM
I was on Amitriptyline quite a few years ago, and it did help me with sleep...I don't even remember why I was taken off of it - I now take Trazadone, which is also used for depression and sleep.........
Your sleeping habits seem like mine - I can never get moving till later in the day - and was always up to atleast 2am - but I'm trying harder to make it to bed by midnight -
My Sleep Study doctor also has me on Lyrica to help me get into a deeper sleep & it 'usually' works pretty good...Just that no matter what time I go to bed, and what time I get up - I'm always tired - most of my energy comes after Supper/Dinner time.....
Wishing you the best, and hope it works well for you..........
Posted 03 July 2007 - 03:44 PM
I am still hesitant about the Amitriptyline, and will converse with my general practitioner before I go on it, think my rheumatologist is going to send her a letter anyway.
I am also still wary about going back on the Prednisone..........ugh, I guess he wants me to be comfortable while the Plaquenil builds up, but I have been on the Plaquenil for 16 weeks now.......does it just keep on improving?
Well I am tired today, I have been doing too much lately,
thanks for your replies
Posted 04 July 2007 - 05:22 AM
I tried Amitriptyline, but since my system is senstitive to quite a few meds, that one didn't work for me. Everyone is different, so even if you hear someone saying a certain med was horrible, it might be wonderful for you, so please keep an open mind about at least trying something. Please keep us posted on how things are going with your meds, and hope that your drained feeling will lift soon. Oh, how many of us can relate to not sleeping, and our hearts go out to you!
Posted 04 July 2007 - 10:41 AM
Thanks for the update on your apt. It sounds like you learned a few useful things. As for the Plaquenil, I have heard that it takes about 3 months for it to be fully in your system. I remember hitting a plateau about that time. It was certainly better than where I was before I started!!!
Posted 04 July 2007 - 02:45 PM
It wouldn't hurt to give it a try and 10 mg. is a very low dose.
Posted 04 July 2007 - 06:46 PM
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