Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

My Dermatoligist Appt.


  • Please log in to reply
7 replies to this topic

#1 Rachelle

Rachelle

    Senior Bronze Member

  • Members
  • PipPipPip
  • 58 posts

Posted 05 July 2007 - 08:56 AM

The dermatologist I saw today did not take a biopsy, but since nobody has swabbed the area to check if there is a "super germ" involved, he decided to do that first and I will go back for a biopsy on July 16 if needed. The "sore" is closed and has not been seeping so the nurse took dry cotton swabs and dug furiously at it!! When she was done it bled just a little and there was some white stuff so I asked her if she wanted that so she got another swab. I asked her to not dig in there again like she just did so she tried to gently get the speck of blood and white. The white did not come off so I asked her if I could try it, but it didn't come off much and was too attached and too sore to keep at it. The white stuff is solid and only 2 pin size spots right beside each other. Looks like part of the skin to me. Anyway this dermatologist seems concerned and ready to figure out what is going on and so am I. My finger is so sore!!!!! I think the biopsy would have hurt less! LOL

#2 bawana

bawana

    Bronze Member

  • Members
  • PipPip
  • 15 posts

Posted 05 July 2007 - 06:49 PM

Hi Rachelle

Sorry you had such a rough time today. Maybe the nurse was having a bad day, who knows.... she could have been a bit gentler to start with.

For the biopsy, they freeze the area first, so it will be better and with today, if they were going to dig like that ...you'd have thought they would've frozen that as well.

Take Care

Bawana

#3 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 05 July 2007 - 07:37 PM

Hi, Rachelle

I am so sorry you have had so much pain with this sore. Is it possible the white spots were calcinosis? There are other pictures if you follow the links.
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#4 Michelle2

Michelle2

    Silver Member

  • Members
  • PipPipPipPip
  • 160 posts
  • Location:San Diego, Ca

Posted 06 July 2007 - 04:32 AM

:huh:

Wow Rachelle

Sorry to hear about the pain you went through yesterday. I can only imagine someone digging at my finger that way. I am going through the same thing with my middle right hand finger. I am hoping to get into the dermatologist myself. I'll be sure to ask for the freezing if they plan to dig at it.

Please keep us posted on what's going on with you.

Take care,

Michelle
Take care and stay warm,

Michelle

#5 Rachelle

Rachelle

    Senior Bronze Member

  • Topic Starter
  • Members
  • PipPipPip
  • 58 posts

Posted 06 July 2007 - 10:43 AM

Thanks guys, and good idea Michelle, make them numb it!! LOL I am wondering about the two white spots. Hopefully this gets all figured out soon.

#6 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 06 July 2007 - 01:11 PM

It sounds like the calcinosis I have on my elbow. It looks like a zit, but the white won't come out. I am sorry that you have to go through all of that.
Nan

#7 Margaret

Margaret

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,001 posts
  • Location:Pennsylvania

Posted 06 July 2007 - 02:54 PM

Hi Everyone,

From reading these stories about calcinosis, I am sure that Gareth has these, too. He's got 2 prominent hard white spots on his lower lip (don't know if you can get them there) and what looks like zits on his chest only they never amount to anything except hard white bumps that don't disappear or do anything. Thanks for the info.....will relay it to the rheumatologist in Aug. If so, then he would have the C & E in CREST.

Take care, Everyone.
Margaret

#8 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 07 July 2007 - 01:23 PM

Oh Rachelle,

OUCH! I agree it sounds like the biopsy would have been easier, but I'm glad they swabbed. Frankly I'm shocked they hadn't done that before.

Please let us know results! :)
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)