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My Nephew Was Just Diagnosed With AIDS

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#1 kelowna52


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Posted 08 July 2007 - 05:09 AM

Good morning to all of you. My Nephew is only 22, 3 weeks ago he started having breathing problems. My sister who is a nurse, his mom, took him into there general practitioner up in Canada, and she suggested taking him to emergency. The problem there having in Edmonton Alberta, is there's not enough beds free in the hopitals so you go to emergency and just sit and wait. So the next day they went to emergency and sat for 8 hous still couldn't get in. So they went back home, she went back to the general practitioner and asked if she could hook them up with a Lung Specialist. In the mean time the general practitioner did a lot of blood work and did say she was testing for HIV. They did get an appointment to the Lung Doctor and he said it could be Pneomonia, I don't know if I spelled that right or not. The Lung Specialist said the same thing go to emergency and wait. In the mean time the general practitioner calls back and says that Nicky, my sister's son, tested positive for HIV. They decided that they had to go to emergency and sit there as long as it takes. So my sister, husband, daughter and other son Nicky all went to emergency. Well, the minute my sis went in and told them he tested postive for HIV they got him in. It didn't take long and they got him into a 2 bed room. A team of doctors came in and told them all what to expect and that by the results of the bloodwork he had full blown AIDS. I didn't realize there was a differance between HIV and AIDS. I guess it all depends on the numbers in a certain test they do. The Lung specialist told them it would take 2 years to get his Immune system back to where it should be. And the doctors told them to take a picture of Nicky now, because in 3 month's they wouldn't recognise him and they meant that in a good way. With all of the new meds out there for HIV and AIDS, they can work miracles now. He will stay in the hospital for one week and then go home and be constantly be monitored. My poor sister is just devastated. I would love to go up there and help her out, but Im feeling lousy so I wouldn't be much help to her. I sure wish I could help them all out some way. He's just so young, they said by the look of the tests they think he contacted this in 2004. It's just amazing what they can do these days. Anyway I just had to vent thanks so much for being here. Take care.

Jackie S.

#2 bawana


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Posted 08 July 2007 - 10:44 AM

Hi Jackie

So sorry to hear your news . Try to keep positve.
My thoughts go out to you and your family. There is always new developments in this field. fingers crossed and tons of hope

Take Care

#3 Sharonvandee


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Posted 08 July 2007 - 10:50 AM

Dear Jackie

Sorry things arent going well for you are your family. It must be made harder by the fact that your nephew is so young. I am sorry you are unable to be with you sister to comfort her at this time as that can often make a difference for you both. Just like scleroderma hold onto the hope that there are so many advances being made and AIDS has alot more research being done on it then scleroderma so anything is possible.

Anway just wanted to send hugs your way

Kindest regards Sharon
Kindest Regards


Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#4 Sweet


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Posted 08 July 2007 - 03:49 PM

Oh Jackie,

I am so sorry!!! I can't imagine how I would feel if I were told something like that about one of my kids.

To try and answer one of your questions - HIV is the virus that causes AIDS. A person can be HIV positive for years and years before it turns to AIDS, or it can progress quickly. You are right however, there are many many treatments to help those afflicted with this terrible disease.

Much love to you and all of your family!
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#5 WestCoast1


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Posted 08 July 2007 - 03:56 PM

Hello Jackie,
My thoughts are with you and your family.


#6 kelowna52


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Posted 08 July 2007 - 04:35 PM

Thank you so much for all of your support. I haven't talked to my sister yet today, so I haven't heard how Nicky is doing. I'm just hoping for the best. I will let you all know what's happening. It sure doesn't help that I'm feeling so lousy, I would really like to be with her and her family right now. Well, thanks again and I will keep posting.

Jackie S.

#7 emmie


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Posted 08 July 2007 - 05:55 PM


This is so much news for your family to absorb. I can imagine how much you would like to be with your sister and her family. I'm sure when you are feeling better there will be a chance for you to go up and be together.

So much research has been done regarding HIV that your nephew will benefit from some good advances in treatments--and this has taken place in just his lifetime! In the next 10 years, much more will take place, so there is lots of hope. I wish him and your family the best.

This is what we have to work toward for scleroderma and other autoimmune diseases. I wonder how/what it will take.

xoxo emmie

#8 jefa


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Posted 08 July 2007 - 11:05 PM

Hi, Jackie. I am so sorry to hear of your nephew's diagnosis, but it seems he is in good hands. You must feel frustrated not being able to be there to support your family, but I am sure they know you are there in spirit. They will continue to need support of the kinds you can give, if only an ear now and then. Hugs to all of you.
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#9 kelowna52


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Posted 10 July 2007 - 07:05 AM

Thank you again for all of your support. I have been trying to get through to my sister and I am unable to hook up with her. I sure hope everything is okay. I'm sure it is, it just makes a person feel better when they can actually speak to the person. Well, take care everyone, I hope your all having a good day.

Jackie S.