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First Endoscopy

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#1 Big GIrl

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Posted 09 July 2007 - 03:18 PM

I wished I would have found this website before. I am getting an upper endoscopy tomorrow and am a nervous wreck. By everything I have read and the trend on your messages, it should be a piece of cake. Any words of advice ?

#2 Sweet


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Posted 09 July 2007 - 03:58 PM

Hi Big Girl,

Welcome to the Sclero forums! I'm really glad you found us. You will find a lot of information, support and friendship here.

I have not had an Endoscopy myself, but many here have and I'm sure they will tell you about their experience.

I look forward to knowing you better.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#3 nan


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Posted 09 July 2007 - 04:24 PM

I am a veteran of endoscopies due to watermelon stomach. It's no problem at all. You definitely need to have someone with you to drive. It's the best sleep I ever get. Take care and let us know how it goes.

#4 beverly


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Posted 09 July 2007 - 04:24 PM

I actually never was able to take the test my symptoms decreased and they felt it unneccesary. I actually forgot all about this post. I hope your test goes well.

Take care

#5 Clementine


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Posted 09 July 2007 - 05:33 PM

OH Big Girl,
Don't worry your pretty little head. Like Nan said, they are simple. You will be knocked out and before you even know anything has happened you are awake. You'll just be groggy and maybe, have a dry throat...some people say their throat is irritated but that's never been the case with me and I have had 2.

Let us know how your appointment goes. They will be able to give you results the day of the appointment. YOu will probably get home and not remember what the Dr. tells you so I'd write it down.

I hope your esophagus is healthy.

#6 jefa


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Posted 09 July 2007 - 07:18 PM

Welcome to the ISN Sclero Forums, Big Girl. Glad you finally found us, but so sorry it is because of your illness. As you have already found, the support and information available on this site is great. I had an endoscopy a few months back and it really wasn't that bad. I was given a choice between having a sedative or just having the anaesthetic spray at the back of my throat. I chose the latter because I wanted to remember everything that happened. I imagined watching the process on the video terminal as it happened. More fool me - the screen was behind me as they have you lie on your left side. Take the sedative and get someone to drive you home. On the other hand, I do remember everything that happened. :rolleyes: It was a very short procedure. They sprayed my mouth with a 'tasty' mixture and had me gargle a bit. Then they inserted a small plastic guard with a hole in the middle between my teeth. This is used to insert the endoscope through to guide it properly and keep you from biting it. They had a nurse on either side of me soothing and talking while the doctor did the procedure. The worst of it was fighting the gag reflex which isn't a problem if you have the sedative. It was over in five minutes and they were very accommodating. You will be allowed an appropriate time to recover and instructed when you will be allowed to drink and eat. I had a bit of a sore throat for a day or two. Let us know how it all goes.
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#7 Big GIrl

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Posted 10 July 2007 - 01:27 AM

Thanks all for your quick responses. I will definitely take the sedative. I am heading now out to the hospital keeping all your kind words in mind. Will let you guys know later how everything went.

#8 WestCoast1


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Posted 10 July 2007 - 04:05 AM

Welcome Big Girl~
I am sorry to hear about your illness, but glad that you found the Forums.

My thoughts are with you as you get your endoscopy. Please let us know how it all goes for you.


#9 adensmore


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Posted 10 July 2007 - 07:08 AM

I'm a veteran of endoscopies because of watermelon stomach. I have them once a month. They give me medications to achieve 'conscious sedation'. I sleep like a baby and wake up fine and ready to go. You have to have a driver and they tell you not to make any important legal decisions for 24 hours :P

#10 Big GIrl

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Posted 10 July 2007 - 03:27 PM

Hi everyone !!! I did it !! Once again thank you all for your support and kind words. My worrying was the worst part of it. I was a real wreck all morning until we checked into the hospital. My husband knows when I am not doing too good and he tries to keep my mind busy and does talk more than the usual (which drives me nuts). Anyways, I hate IV's because they always have to pinch me a good 3 times before they get it in. Nevertheless either they are making the needles smaller or this nurse was really good. She got it the first time and I only felt a little pinch. Anyways, everyone at the hospital was so good to me. When they gave me the pain medication and versed, the nurse said it would burn a little. That I must say was worst than the IV. It did not burn a little as it went into the vein but a LOT. If any of you have ever had a cat scan with those huge bottle of iodine they put into your system for contrast , you will know what I am talking about. You feel it burn all the way as it runs into your veins. Maybe 15 seconds after I was out and when I woke up I was already in the recovery room. I recall images of the doctor talking to me and saying he did not find anything. I kind of remember asking him : "no ulcers, no gastritis, no nothing?" and he said he saw everything fine.

My husband confirmed to me this evening (after I went home, I took a long 3 hour nap) that effectively the doctor said there was nothing wrong. That was a relief because I was already thinking of tumors and stomach cancer. But on the other hand, then what is the explanation for what those stomach problems I have?

I get very frequent acid reflux and when I eat (even if it is a small amount), I feel overstuffed and full up to my neck and then I am miserable for the next hours. I feel like the food is stuck right on the top of my stomach and under my breast bone. My husband said the doctor told him it could be a possible hiatal hernia but that he did not see anything during the endoscope. Does this make sense ?

#11 Margaret


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Posted 11 July 2007 - 01:35 AM

<< I feel overstuffed and full up to my neck and then I am miserable for the next hours. I feel like the food is stuck right on the top of my stomach and under my breast bone. >>

Hi Big Girl ,

Glad everything went well yesterday and welcome to the forum. The feeling you describe is how my son feels after each and every meal. We found out last Oct that his esophagus had stopped pushing food down....esophageal dismotility. Have you had a swallowing test done? You eat barium coated food and they watch to see if it goes down correctly. Gareth has to 'wash' all his food down with liquids and, at times, I don't think that goes too well either. His endoscopies also show that everything is normal. He's been on GERD meds for 9 years now which has helped keep the esophagus from eroding.

Take care, Everyone.

#12 Sharonvandee


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Posted 11 July 2007 - 02:59 AM

Hey Big Girl

The symptoms you are describing are what I used to feel, the gastrtoscope they initial did showed nothing it was only after a monometry test and a PH study that they discovered the real problems.

Since then mine has worsened unfortunately and I am now booked for another gastroscope to access if I am suitible for more surgery to tighten the lower sphincter and repair a hiatus hernia.

Maybe they will let you know more at a follow up appointment with your specialist. Good luck with finding out more, I know that I cried when after the gastroscope they told me nothing was wrong because I knew what I was feeling and suffering at home. I hope you get answers soon
Kindest Regards


Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!