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Osteopenia


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#1 nygirl

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Posted 02 November 2006 - 07:13 AM

My first time posting on the new board so hope I do it right. I have a question on Osteopenia. I was diagnosed with osteopenia (First sign of osteoporosis) last year when my Rhematologist did a bone scan on me, I had a broken rib that I had no idea how it broke so he wanted to see how the bones were. I am 34 years old (to young for bone loss) so I am curious if Scleroderma can cause bone loss. I had mentioned it to the first rheumatologist I had but not to this last one I went to. I forgot to mention it to him. I go back on the 9th for a recheck so I was going to ask then. Haven't been diagnosed with Sclero or anything yet, I am still on the no clue what is going on road.

Also what is UCTD or MCTD exactly and how do they come up with that diagnosis? Is there a test for it? Thanks everyone and hope you guys stay warm!! Its getting cold here!
Brenda

#2 Patty

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Posted 02 November 2006 - 09:05 AM

I have this also. I am supposrd to take 1000 mg of calicum a day and go on one of the mds for it after my next dr visit. As for the UCTD and MCTD I can't help you with the UCTD but I have MCTD and thats mixed connective tissue disease and they came up with that because I have sclero, lupus and dermatomyositis. I also have thyroud and liver going on but I think the first 3 are whet got me the diagnosis of mctd. I hope this helps you some.

When you say you have to fdo to the doctors for a red neck what do you mean by that. I am asking because one of the sxs that got me to the doctors to begin with was a red neck and rough chest area along with the skin on my face changing color.

Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#3 nygirl

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Posted 02 November 2006 - 11:51 AM

Hi Patty, thanks for the reply. I think you misread, I have to go to the rheumatologist for a recheck not redneck, don't worry I do the same thing. I take Estrogen and 1000mg of Calcium for now. My bloodwork was negative for Sclero and lupus but I have a high ANA. I am going to mention the osteopenia to the rheumatologist I am now seeing. I think I am way to young to have it and there has got to be a reason. I also have vascular disease and don't smoke so thats another thing. Thanks again for replying
Brenda

#4 Beanpole

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Posted 02 November 2006 - 11:58 AM

Welcome to the family Brenda!

I do hope you continue to come to the forum and keep us posted on your progress and thoughts. To answer your other question, UCTD stands for Undifferentiated meaning when a person has symptoms of various connective tissue diseases without meeting the full criteria for any one of them. You can find more information about it at Overlap Syndromes.


I do hope all goes well for you during this time. Please keep us informed on how you're coping. Take good care of yourself. And if you ever need someone to talk to, we're here for you!! Email me anytime

Peace
Michelle


Michelle C. Hunter
ISN Book P.R. Coordinator for the U.S.
International Scleroderma Network

#5 janey

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Posted 02 November 2006 - 12:00 PM

Brenda,
Welcome to the Forum! I'm glad you have found us and are posting already. I'm sorry you are here due to health problems. Hopefully, on your next visit your doctor will actually be able to determine the cause of those problems.

In reference to your questions on osteopenia. I did find some articles here at ISN that might help answer you question. This articles "Osteoporosis (OP) in Scleroderma" states It is unknown whether OP is truly increased in SSc or whether this association has been observed in some studies as a result of other confounding risk factors for OP. There are more articles you might explore in the Bone Readsorption section.

UCTD is undifferential connective tissue disease and is when a person has symptoms of various connective tissue diseases without meeting the full criteria for any one of them.

MCTD (as Patty mentioned) is mixed connective tissue disease and is when a person has two or more connective tissue diseases. I have MCTD with diffuse sclero and polymyositis. This is sometimes referred to as overlap diseases. The provided links might be able to answer your other questions as to how they diagnosis it. I was diagnosis through a couple of bloodtests (ana and CPK) but mostly symptoms.

Please let us know how your doctor's appointment goes on the 9th and please, if you have more questions or just need a virtual hug - we're here for you.

Big Hugs,


Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#6 nygirl

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Posted 02 November 2006 - 12:51 PM

Hi Janey, thanks for the links. I will let you know how the appt goes. I want to ask the doctor about the UCTD. I have symptoms that no one seems to know why I have them. Shortness of breath, chest pains, weakness and fatigue.. It would be nice if I could get answers. Thanks everyone
Brenda