Posted 02 November 2006 - 07:13 AM
Also what is UCTD or MCTD exactly and how do they come up with that diagnosis? Is there a test for it? Thanks everyone and hope you guys stay warm!! Its getting cold here!
Posted 02 November 2006 - 09:05 AM
When you say you have to fdo to the doctors for a red neck what do you mean by that. I am asking because one of the sxs that got me to the doctors to begin with was a red neck and rough chest area along with the skin on my face changing color.
If Life hands you lemons, make lemonade.
Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.
Posted 02 November 2006 - 11:51 AM
Posted 02 November 2006 - 11:58 AM
Welcome to the family Brenda!
I do hope you continue to come to the forum and keep us posted on your progress and thoughts. To answer your other question, UCTD stands for Undifferentiated meaning when a person has symptoms of various connective tissue diseases without meeting the full criteria for any one of them. You can find more information about it at Overlap Syndromes.
I do hope all goes well for you during this time. Please keep us informed on how you're coping. Take good care of yourself. And if you ever need someone to talk to, we're here for you!! Email me anytime
ISN Book P.R. Coordinator for the U.S.
International Scleroderma Network
Posted 02 November 2006 - 12:00 PM
Welcome to the Forum! I'm glad you have found us and are posting already. I'm sorry you are here due to health problems. Hopefully, on your next visit your doctor will actually be able to determine the cause of those problems.
In reference to your questions on osteopenia. I did find some articles here at ISN that might help answer you question. This articles "Osteoporosis (OP) in Scleroderma" states It is unknown whether OP is truly increased in SSc or whether this association has been observed in some studies as a result of other confounding risk factors for OP. There are more articles you might explore in the Bone Readsorption section.
UCTD is undifferential connective tissue disease and is when a person has symptoms of various connective tissue diseases without meeting the full criteria for any one of them.
MCTD (as Patty mentioned) is mixed connective tissue disease and is when a person has two or more connective tissue diseases. I have MCTD with diffuse sclero and polymyositis. This is sometimes referred to as overlap diseases. The provided links might be able to answer your other questions as to how they diagnosis it. I was diagnosis through a couple of bloodtests (ana and CPK) but mostly symptoms.
Please let us know how your doctor's appointment goes on the 9th and please, if you have more questions or just need a virtual hug - we're here for you.
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)
Posted 02 November 2006 - 12:51 PM