Posted 15 January 2008 - 05:09 PM
Let us know if does help your situation. goodluck! I really hope you get a long time solution.
Posted 15 January 2008 - 09:19 PM
Seriously though it's not at all funny and I get a lot of irritation not to mention itching with this, usually relieved by a good old soak in the bath -- why I don't know?
I could always mention this to my general practitioner but knowing her she'd probably report me to a social worker or throw me out of the surgery -- Have I mentioned her lack of knowledge and sympathy regarding sclero?
A delicate subject but one I feel needs to be discussed, looks like it a pretty common problem.
Posted 16 January 2008 - 08:44 AM
I thought it was menopause too, it probably is but then again maybe sclero?? I do this with every little symptom, is it this or that. Of course we have anxiety, this disease is baffling!
Anyway, we found a lube that works pretty well, its silicon based and (embarressed again) we found it in a gay men's store in NYC, as we strolled in unawares! It's called 'eros' and made in Germany. The man in the store was very helpful and gave us a free sample as it is very expensive, but maybe there's other silicon based lubes made in the US? Thank goodness for this forum!! It's so amazingly nice to know I am not alone in this disease.
Posted 18 January 2008 - 05:24 AM
I hope that this helps.
P.S. I still do use lubrication my preference is Astroglide.
Posted 20 January 2008 - 05:54 PM
As I have been suggesting to Susie and the rest of the women here, try using replens. You use lubes right before sex which is sometimes, can change the mood, and maybe a little less appealing to your partner/hubby. Replens comes in two variants but I suggest the vaginal moisturizer since it is more convenient to use. You use it every 3 days and no need to apply right before sex. Good luck!!!
Posted 18 December 2011 - 04:37 PM
I see that no one has posted here since 2008 - I hope you guys are still out there!! Good luck to all and thanks again for posting.
Posted 18 December 2011 - 05:52 PM
Welcome to the forums! don't have this particular issue but as you have seen from the replies many do and it ain't nice. I hope that you get some relief from your symptoms soon and that your appointment goes well, maybe keep us informed?
Take care and keep posting.
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Posted 19 December 2011 - 02:02 AM
Welcome to these forums!
Like some of our other members I have also experienced this problem so I can sympathise with you, but would almost definately say in my case that it's age related (sadly! ) and not neccessarily to do with having Scleroderma.
Meanwhile I've included a link to UCTD to give you some more information and please do post again and let us know how you get on with your appointment in February.
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Posted 19 December 2011 - 08:21 AM
I have to admit it took me an age to pluck up the courage to mention it to my general practitioner.
Posted 19 December 2011 - 04:07 PM
I read right back to the beginning of this thread and saw the mention of vegetable oil. It reminded me of when our daughter was tiny and the Pllunket Nurse (home visitor nurse) suggested I use edible oil on her bottom. It made sense to me then that if it was OK to swallow it, it must be OK on the outside too.
I have never thought of using it for this application though - but why not?
Posted 19 December 2011 - 11:00 PM
Actually, one of my first symptoms was it hurt during sex. Then the other things came along.
Posted 23 December 2011 - 09:45 AM
I have terrible vaginal dryness, inside and out!! It has gotten so bad that when my Gynaecologist did the pap smear this year she had to use the smallest speculum and even that hurt!! Sex is terrible and it is something my husband doesn't understand. I couldn't even think of having it without lubrication and still it's sore! I was beginning to feel alone and my Gynaecologist keeps telling me it's perimenopausal. But I am not starting to go through the change yet......