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#1 peanut


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Posted 01 August 2007 - 12:27 AM

Hubby and I were talking about Scleroderma and he asked me a good question I thought I'd pose to the group. I know it's not the happiest thought, nor one I'm necessarily considering - just one of curiosity:
Can someone with Scleroderma and ILD get a lung transplant? Or would the Scleroderma produce scar tissue in the new lungs like it did in the old lungs?


You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#2 nan


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Posted 01 August 2007 - 03:05 AM

Excellent question, but I don't know the answer. I am sure someone on the site will know.
Have a good day!

#3 WestCoast1


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Posted 01 August 2007 - 03:54 AM

Hi there Peanut,
That is an interesting question...I myself have never heard of someone getting a lung transplant due to Sclero related ILD, but that doesn't mean that it isn't possible.

I would guess that there are the same risks for scleroderma patients as there are in a other patients There is still the risk for GVHD where the donor's
cells see your body as foreign and your body attacks them.

From what I have read, lung transplants are an option for scleroderma patients suffering from ILD.



#4 janey


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Posted 01 August 2007 - 04:53 AM

We do have a small section on lung transplants in one of our pulmonary pages. Apparently it's being done and is possible, but as Erin pointed out - it's risky due to GVHD.

Hopefully your meds will help to stabilize if not improve you lungs so a transplant never even becomes a consideration. I'll keep my fingers crossed for you.

Big Hugs,

Janey Willis
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#5 Clementine


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Posted 01 August 2007 - 04:27 PM

One of my friends had an appt. today to discuss a transplant, at a clinic at UCLA. He has systemic sclerosis with severe ILD. I will let you know what he finds out.