Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Pft's


  • Please log in to reply
8 replies to this topic

#1 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 01 August 2007 - 03:02 AM

Hi,
I have down how to read PFT's, but it is still hard to take it all in. My rheumatologist didn't bother to call me to discuss anything, so I just went in to get copies of reports. On the PFT report he wrote overall good. I didn't like the fact that some things had decreased. Though they all are in normal range. I have a call into rheumatologist at Hopkins. Here goes:
Jan- 2007 July2007
FVC= 96% FVC= 90%
FEV1= 100% FEV1= 82%
FEV1%= 85% FEV1%= 74%
TLC= 102% TLC= 84%
DLCO= 79% DLCO= 82%
also in report said
mildly decreased
diffusion capacity
Because of the mildly decreased diffusion capacity in January rheumatologist at Hopkins wanted another PFT done in July.

Also, I had crystals in my urine. Anybody else ever have that?
Thanks ahead for any input.
Have a good day!
Nan

#2 Clementine

Clementine

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 01 August 2007 - 03:52 AM

Nan,
Hello! I think your numbers look pretty good.

My Dr. told me that unless there is a trend of more than a 10% change in pfts, he doesn't consider it an actual change. He made a chart of my pfts over the last couple of years (so it's easy to read) and my numbers have gone up and down, but not within 10%, so he concluded that I was stable. Did that make any sense at all? :)

xo,
Jennifer

#3 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 01 August 2007 - 04:58 AM

Nan,
I agree with Jen - Your numbers look good! Here's our page on Interpretation of PFT's that many of us use. You'll see from this that your numbers are normal. Your DCLO is a tiny bit low since 80 and above is normal. How much did it decrease since January? Was it significant?

I sure would be happy with these numbers. Congratulations for such great results!

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#4 nan

nan

    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 01 August 2007 - 05:24 AM

Thanks Janey and Jennifer- that's good to know. I just got worried with the decrease.
Nan

#5 WestCoast1

WestCoast1

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 554 posts

Posted 01 August 2007 - 03:09 PM

Hi Nan,
I am sure you found this info by now but this is what I read about crystals in the urine: Healthy people often have only a few crystals in their urine. A large number of crystals, or certain types of crystals, may mean kidney stones are present or there is a problem with how the body is using food (metabolism).
*WestCoast*

********

#6 nan

nan

    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 01 August 2007 - 03:18 PM

Erin,
I hadn't found that. Thanks so much!
Nan

#7 Colleen

Colleen

    Newbie

  • Members
  • Pip
  • 9 posts

Posted 02 August 2007 - 12:34 AM

Janey

The site on interpreting PFT's and the idea of creating a chart is great. This will give me a better picture of my status. Thanks.

Colleen

#8 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 02 August 2007 - 12:49 AM

Hi, Colleen and welcome to the ISN Sclero Forums. You seem to have slipped in underneath my less than perfect radar! :) I hope you will agree that this is a great spot for information and support and I look forward to learning more about you as you continue to post.
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#9 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 02 August 2007 - 04:05 AM

Colleen,
I'd like to join Jefa in welcoming your to the forums! Good catch Jefa! I'm glad you have joined us and are already finding some useful information. I love the articles on pft interpretation. I pull it up everytime I get tested.

Like Jennifer, it was my newest pulmonary doctor that finds a "trend" just as important as the individual results. When I went in last September, my new dr pulled out 3 years of pfts and noticed a steady downward trend . Unfortunately, it was ignored 6 months prior so by September my numbers were in the 60% range. She immediately put my on PH meds and my rheumatologist switch my immunosuppresant. My last pft showed stable numbers and a slight improvement in DLCO. So keep all your test results and look at them as a whole, not individually.

Again welcome! We hope to see you post often.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)