Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

For Pity's Sake


  • Please log in to reply
20 replies to this topic

#1 Tammy

Tammy

    Senior Bronze Member

  • Members
  • PipPipPip
  • 67 posts

Posted 09 August 2007 - 08:11 AM

I just got home from my dentists appointment, over 2 hours of being on my head! He had to cut out my wisdom tooth (after prying it out of the gum!) The main nerve that runs through your face was some how wrapped around the root, OF ALL THINGS!! After he finally gets it out he tells me that he may have nicked the nerve and that I may not regain feeling in the left side of my face or my tongue, I can't believe this! At this moment I feel like I am drowning, I don't think that I can take much more bad news from any direction!!

#2 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 09 August 2007 - 08:36 AM

Tammy,
I am so sorry. It is pretty frustrating! The other day I looked at my husband and said, " Wouldn't it be neat if I felt good for just an hour?" Hang in there! and I hope that the dentist was wrong.
Nan

#3 Sam

Sam

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 640 posts
  • Location:Delta, Ohio

Posted 09 August 2007 - 08:37 AM

wow how nice of him at least he told you. I know what you are saying I have been going to theraphy since Monday and today my left arm is killing me. I'm about ready to chop it off, LOL!! But I won't. Take care and I hope everything is ok. Sam
Sam

#4 annkd

annkd

    Silver Member

  • Members
  • PipPipPipPip
  • 172 posts
  • Location:Sacramento, Ca.

Posted 09 August 2007 - 08:58 AM

Hi Tammy - Sorry to hear about your dental experience. Over 20 years ago I had my wisdon teeth pulled and sure enough, I could not feel the left side of my tongue and part of the left side of my face. I went back to this fellow and he told me "Oh, don't sorry, it will come back". Well, it never did. It took a while to get used to - I had to be very careful not to bite my tongue. If you do experience this, hang in there - be patient, it will get easier. Be sure you tell your hygenist. They need to go very carefully around the bottom teeth. Feel better!! -Ann

#5 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,890 posts

Posted 09 August 2007 - 09:58 AM

Oh Tammy, I am so sorry!!!!

Was this a general dentist, or oral surgeon? A lot of times with nerve damage like that, it will takes months to reconnect but most of them do over time. So there is some hope out there.

Again, I'm so sorry.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 Kamlesh

Kamlesh

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 315 posts
  • Location:Dublin, CA

Posted 09 August 2007 - 10:58 AM

Tammy,

What a coincidence? About 8-9 years ago, I had my wisdom tooth pulled. Everything went smoothly, but I started feeling numbness on left side of my face and right side of my chest. I had very respectable dentist and he was good friend of our family. He said this should not happen, but to be safe he referred me to another dental surgeon. His opinion was also same. According to him, there is not a single nerve in the area which can affect my entire left face and right chest. My primary physician referred me to a neurologist. He took brain MRI, fluid from spinal cord, and very exhaustive list of blood tests. He saw abnormal MRI -- some scars in my brain and he thought it was MS. My ANA was positive and my SED rate was high. He started me on small dose of Cellcept at that time and continued to look for any autoimmune disease. He continued to believe either MS or Lupus. Either he or my primary physician refused to consider Scleroderma due to rarity of the disease. I did not have skin thickening at that time. I consulted one of the top notch doctors in the country for Lupus in Northwestern University in Chicago and he went through all tests for Lupus and ruled it out. By that time, I was just tired and fed up with all testing, and simply ignored the issue. If I had to conclude now, it was start of Scleroderma and dental work was just a coincidence. I do not have any more numbness on chest; numbness of my face is limited to my lips and tongue. My facial skin started to thicken in 2003. The brain scars are still mystery to me. It could be from seizure, stroke, minor heart attach, or something else. I had completely forgotten about it till this post. I should dig out my old records and take it back to my primary physician for review for the abnormal MRI and see if there is something to worry about. I hope it has nothing to do with severe depression I having for last two years.

I was finally diagnosed with Scleroderma in March 2005 - seven years later.
Kind regards,

Kamlesh


#7 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 09 August 2007 - 12:22 PM

Tammy,

Here's a (((((((((((((((((((very BIG HUG)))))))))))))))))))).
I'm so sorry that you had to go through that. The "nerve" of that doctor!

Four years ago I had a muscle biopsy done and the doctor pulled a nerve which brought me up off the table. My upper right thigh was totally dead for a year, but it has slowly gotten better. It still has a little of a numb feeling, but lots of improvement. Hopefully, your feeling will come back with time. It takes a while for nerves to heal. In the meantime. please take Ann's advice and be careful as to not bite your tongue. Of course if you ever thought about getting your tongue pierced, I guess this would be a good time. LOL (Kidding!)

Big Hugs Darlin',
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#8 WestCoast1

WestCoast1

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 554 posts

Posted 09 August 2007 - 12:57 PM

Hi there Tammy,
Wow you are a strong person...I can still hear the fight in your voice. I will send you a BIG HUGE HUG! You diserve it. Please hang in there, we are always here to listen!
*WestCoast*

********

#9 Tammy

Tammy

    Senior Bronze Member

  • Topic Starter
  • Members
  • PipPipPip
  • 67 posts

Posted 10 August 2007 - 07:01 PM

Good news! I had a follow up with my dentist today, the feeling is back in my tongue and most of my cheek and I think once the swelling goes down that will return as well! valuable lesson: Never let a regular D.D.S. perform the job of an oral surgeon (OUCH!!!) Thanks for listening to me vent!




Warm Wishes to All

#10 barefut

barefut

    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 11 August 2007 - 06:15 AM

Tammy,

So glad you have your feeling returning. Sounds like you didn't need one more thing!

Take Care,
Barefut

#11 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 11 August 2007 - 06:40 AM

Tammy,
That's Marvelous News!!!!! What a relief. One stress maker off your list!

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#12 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,890 posts

Posted 13 August 2007 - 04:38 PM

Oh yeah! I'm so happy for you.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#13 Kamlesh

Kamlesh

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 315 posts
  • Location:Dublin, CA

Posted 13 August 2007 - 05:00 PM

Hi Tammy,
So glad to hear the good news.
Take care!
Kind regards,

Kamlesh


#14 WestCoast1

WestCoast1

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 554 posts

Posted 13 August 2007 - 05:28 PM

Hey Tammy,
I am glad to hear the good news!
*WestCoast*

********

#15 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 13 August 2007 - 10:52 PM

Good news, Tammy. We have enough to worry about without having our caretakers create new problems.
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#16 jaxs

jaxs

    Silver Member

  • Members
  • PipPipPipPip
  • 112 posts

Posted 14 August 2007 - 12:46 AM

hey sorry to hear about your bad experience at the dentist , it happened to me about 4 years ago when I was getting my wisdom tooth out ,they dragged out half my sinus but didn't relise, the side of my cheek filled up with puss from the wound in side my face and I was taking to hospital after 6 weeks of dreadful pain, they took me to theatre and did a clean up job on my cheek and sewed up the hole in my sinus that they made it took a while to get better and at the time the pain was herrendos, upto date tho its better but I have no sense of smell on my right nostril . I do hope your better soon and the feeling comes back hugs from jaxsxx
live life for today and not for tomorrow

#17 Tammy

Tammy

    Senior Bronze Member

  • Topic Starter
  • Members
  • PipPipPip
  • 67 posts

Posted 14 August 2007 - 12:58 PM

Thank you all so much for the warm wishes and hugs!! I went for another follow up today, the bone is exposed and has a bit of infection, hence the pain and continued swelling. I have to go back Thurs. if it's the same he is going to put me on prednisone (yeah :blink: ) I have most of the feeling back, just a small patch that is still numb. Thank you for all the well wishes.



Hugs and Warm Wishes Back!

Tammy

P.S. I hope your left arm feels better Sam!! :lol:

#18 Tammy

Tammy

    Senior Bronze Member

  • Topic Starter
  • Members
  • PipPipPip
  • 67 posts

Posted 16 August 2007 - 05:27 PM

I finally decided yesterday that I better go see an oral surgeon for this tooth problem. The pain has gotten soo bad, I haven't been able to sleep more than a couple of hours a night so to top it all off I am exhausted! I know the pain is from the exposed bone and infection, my whole face is swollen, even my eye socket! Admist all this complaining (SORRY!) I do have a question. Do I need to tell this dr that my primary care physician thinks that I have an autoimmune disorder? I am going to see him in the morning and I don't take any type of medication (other than for hbp) but does he need to be aware of this?


Thanks All
Tammy

#19 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 16 August 2007 - 06:10 PM

Tammy,
Poor girl - I'm sorry you are in so much pain and having so much swelling. Please tell the oral surgeon or whoever you are seeing in the morning any and all medications that you are on. You could mention that you have been having health problems and that an autoimmune disorder is suspected, but I know my dentist and endodonist are more concerned about my medications and any heart problems.

I hope things go well. Please let us know how it went. Good thoughts for you to feel better soon.

Big Hugs
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#20 WestCoast1

WestCoast1

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 554 posts

Posted 16 August 2007 - 06:46 PM

Hi Tammy,
I wish you well at your next dentist visit. Hopfully your Predn. treatment will be a short!
Hugs~
*WestCoast*

********