Posted 11 August 2007 - 10:37 AM
I got so annoyed cos everyone kept pestering me (the people who don't know me real well, and don't know that I have scleroderma and tired joints). they kept trying to get me to dance and said I was no fun and stuff.
The only thing is, I never know what to say. When I say "my legs are sore" they just look at me as if I have 2 heads and don't get me.
I know a lot of people on this are mostly older than me, so I'm not sure if it happens to anyone. but if it does, let me know what I should say to them.
Posted 11 August 2007 - 02:35 PM
Tell them you are going to sit a few out, because you are stealing the show with all your moves...
I am sorry you are young and going through these struggles. Some times it just doesn't seem fair.
Take Care Sweetie,
Posted 11 August 2007 - 04:54 PM
I love Jen's answer! Another idea might be to space your dancing out so you last longer. After some dancing at the start of the night, sit a couple out (say you need a drink or use the bathroom whatever "excuse" if you need one). Then you might feel rested and be good for a few more.
If you do this a few times you might last a bit longer for the night and not have to hear the insensitive comments. It is hard to hear people make remarks like that; you ARE fun and you'd like nothing more than to be out there dancing!
I'm glad you got out and hope you get out some more. (Maybe leave the ones that don't know about your scleroderma at home :-)
Posted 12 August 2007 - 12:55 PM
Normally I'm grand, so maybe thats why everyone thought I was being moany or whatever that night.
Posted 13 August 2007 - 04:30 PM
I'm so excited you are still out dancing!!! I'm a dancer myself and love the clubs. The group of friends I have ended up with (that still love me even though I'm sick) totally understand I can't "shake it" until 3:00 a.m. anymore. I do what I do and then say "I'm done" they all know what that means and I either sit the rest of the night out or quietly bow out all together and go home. The important thing is I had fun while I was able to.
I also make sure I don't over do it, or I will be sore and in more pain than normal for several days and then that takes the found out of the night for me.
Posted 14 August 2007 - 01:59 AM