Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.



  • Please log in to reply
3 replies to this topic

#1 jaxs


    Silver Member

  • Members
  • PipPipPipPip
  • 110 posts

Posted 14 August 2007 - 12:35 AM

thanks for the replies ,,,i ave been seeing a doctor at my local hospital for the last year but in june he said he didn't know wot else to do for me so he reffered me to the freeman in newcastle, im currently seeing another doctor at but she can't give medication until she has seen the tests and results that have already been done as the last doctor says there was a bit of diffuse on my lungs that has just started, I went to see my own doctor about 2 months ago for the way I was feeling and for my depression ,, it wasent a nice experience,,,,,she told me I was makeing to much of my illness and when I mentioned my cusin shes just says thats unlikly to happen, she then told me to make an appointment in about 10 days time to go back to see her so she could get all info from my doctor at the hospital then she would explain it to me, I was then in tears and she bascally said theres nothing bad with me that I shoud cry about, I was feeling terrible,,so I didn't go back there are other doctors there but feeling tired to go at the moment but I always go to the hospital appointments im there in sep so ill wait to see her .im on DLA and that has just started in june too my doctor at the surgery refused to sign it unless I payed 20 pounds,i had to appeal against the first decicion and they needed more evedence but luckly the doctor at the hospital was a right canny one and did to for me free of charge , I get low rate but I do feel gd that its reconised at last that I am ill. I have gd days when I can feel very possitive but others days I just get on with it for the sake of the kids, I look after 3 by myself but I have older kids who help out well thansk again for your replies and your time hugs from jaxsxxxxx
live life for today and not for tomorrow

#2 jefa


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,284 posts
  • Location:Scotland

Posted 14 August 2007 - 01:23 AM

Thanks for explaining that a little more, Jaxs. If you are on DLA, you should also be able to qualify for incapacity benefit if you have been unable to work for the requisite amount of time and are under 60. What was the 20 pounds for? Anyway, stick in there. If your current general practitioner isn't the right one, see a different one. Find out which days he ISN'T working, and ask for an appointment for that day. Sometimes you just need a fresh ear. Good luck, sweetie.
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#3 jaxs


    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 110 posts

Posted 14 August 2007 - 01:52 AM

i had to appeal against the first decicion for the DLA, as they refused me so the 20 pounds was a charge for the doctor to sign the letter they sent to her , I was told off my social worker who was helping me at the time its up to her descresion if she charges or not and could ask upto 80 pounds to sign a letter,im already on SDA and have been for a long time for depression, but not on incapissity thansk for your reply jaxsx
live life for today and not for tomorrow

#4 Clementine


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 14 August 2007 - 02:47 AM

I was sad when I read your post. I just wanted to say I feel for you and to hang in there.