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#1 Margaret

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Posted 14 August 2007 - 11:55 AM

Hi Everyone,

Well, Gareth's 'good news' didn't last too long!!! I got a call today from the gastro office. Everything may have 'looked great' during the endoscopy but the biopsies show otherwise. Chronic inflammation in the esophagus, stomach, and all areas of the intestine that were bx'd. Now we have to r/o IBD....inflammatory bowel disease. I guess it also is an autoimmune disease. Other things to r/o are celiac disease, vit. def/anemia, and H-Pyloria (ulcers). Thank goodness he doesn't have intense abdominal pain......yet. Soooooooooo, how many of you also have IBD along with the esophageal/stomach/intestinal problems causd by sclero? Or...is IBD common among sclero people? Maybe, that explains the 'hard stomach' feeling that he has had since May?

Take care, Everyone.
Margaret

#2 Sweet

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Posted 14 August 2007 - 01:29 PM

Oh goodness, I am so sorry. That poor guy!

I don't have IBD but I do have a friend that has it, you are right it is an autoimmune disorder as well. She battled it for years and just last year had her colon removed. It was a long time healing/recovery but she feels like a new person!

I hope the doctors can come up with a game plan that is livable for you guys.
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#3 janey

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Posted 14 August 2007 - 04:02 PM

Margaret,
So sorry to hear some bad news has slipped in there with the good. Here's an excerpt from an article on IBD that I found on eMedicine health and Inflammatory Bowel Diseaese:

The term inflammatory bowel disease (IBD) covers a group of disorders in which the intestines become inflamed (red and swollen), probably as a result of an immune reaction of the body against its own intestinal tissue.

Crohn's and Ulcerative colitis are the two major types of IBD. I'm sure you'll find lots more stuff. I found the comments about IBD treatment very interesting.

Here's our link to Celiac Disease. The research never ends does it?

Give Garath a big hug for me,
Janey Willis
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International Scleroderma Network (ISN)

#4 nan

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Posted 14 August 2007 - 04:29 PM

Margaret,
I am so sorry. I hope that things can be figured out..
Nan

#5 emmie

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Posted 14 August 2007 - 04:44 PM

Margaret,

I'm really sorry to hear this...like you said maybe this will help to shed some light on the "hard stomach".

I am scheduled to have the endo and colonoscopy stuff in Sept. The gastro wants to rule out celiac, IBD, etc. ONe other thing she mentioned as a possible cause of my troubles was "collaganeous colitis". Do a google search on it; I found some information that way. Might (or might not) be something to ask Garrett's doctor about.

Wishing you guys the best as always. Is he ready to go back to school or does he attend year 'round?

xoxo emmie

#6 emmie

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Posted 14 August 2007 - 04:46 PM

Sorry, Margaret, one other thing the gastro mentioned was bacterial overgrowth. The test she mentioned for that is blowing in a bag every 15 minutes for like 3 hours! That does NOT sound like fun so I"m hoping we can avoid that.

xoxo emmie

#7 WestCoast1

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Posted 14 August 2007 - 05:02 PM

Hi Margaret,
Boy Gareth has come along way to let this bring you down. You guys will get through this one for sure. I think that sometimes we suffer from different types of stomach problems. It always seems to be the extremes however. Medications have alot to do with this, but sometimes its just unavoidable.

I might just give him the appropriate med for what he is experiencing at the time.

Again, I am sorry that you two got the bad news...were always here to listen.
*WestCoast*

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#8 ShawMJ

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Posted 14 August 2007 - 05:14 PM

Hi Margaret I.m sorry to hear about his IBD,I have it as I have ulcerative colitis I've had it longer than the scleroderma but I do know now that its also a autoimmune disorder.Its put me in the hospital a few times and is not good to have,I hope really hope that he doesn't have too many problems with it.He sure has a lot to contend with and that happens with sd you never know what will come up next.Just stay strong,take it a day at a time and let us know how things are going theres always a bunch of "ears" to listen and try to help.Take care of yourself too.Smiles,Mary-La.