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Biomarker for Diffuse Scleroderma skin has been discovered!


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Lab Results And Questions


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#1 Clementine

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Posted 15 August 2007 - 09:38 AM

Hello,
I have a young friend who's Mom has Scleroderma but it's not bad *yet* and they don't really know a lot right now. She is Korean and cannot understand English very well, let alone what the doctors are telling her, so I am trying to help my friend with his Mom.

She has a high ANA titer and positive speckled pattern and her SSA and SSB and anti centromere antibodies test all came back negative. Her PFTS and kidneys were better than normal, whatever that means. There was a little scarring in the alveoli but that could be from anything.

Does anyone have any insight on what they think this could be, diffuse or limited, according to her labs?
I recommended they see a sclero expert but the rheumatologist they go to said she was not bad enough to be referred to a specialist.

Thanks,
Jen

#2 janey

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Posted 15 August 2007 - 12:16 PM

Hey Girl,
Always helping someone out! You are so sweet!

Here's a believe it or not: We have the ISN "What is scleroderma?" page in Korean. Maybe she could go to that link and it might help her.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#3 Clementine

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Posted 15 August 2007 - 12:27 PM

Janey,
No way! Ha! Thank you so much. I just sent the link to my friend. He's entering Med School so he is starting a little early being his Mom's DR and trying to translate. Poor Mom, she is really worried, but maybe if she reads it will ease her mind. I don't think her case is bad.

I know, I am always trying to help people. It makes me feel good!

Thanks,
Jen