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St. Louis Rheumy/sclero Experts?


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3 replies to this topic

#1 KristaRN

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Posted 03 November 2006 - 09:06 PM

I haven't yet seen the rheumatologist I have made appt with, takes 2 months to get the appt, and I wondered if anyone is in the St. Louis area that has had experience with any in this area. I hate to waste time on somebody that isn't any good being it takes so long to get in to see them. I didn't see anybody in Missouri listed on the expert list here.

#2 Guest_Jennifer_*

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Posted 05 November 2006 - 03:35 AM

Krista,
Did you find your Dr.? It looks like Chicago may be the nearest for you to get to see an expert. I hope you had some luck finding a good Dr.
Jennifer

#3 Dee

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Posted 05 November 2006 - 01:26 PM

Hi, Krista. I'm so sorry you are suffering. At first it is especially confusing trying to navigate these waters.

Maybe your most important decision is who will be your doctor. Since you are a nurse, you have an excellent network to tap into. Ask doctors and other nurses who they would send their wife/mother to.

Even if you have to wait longer to get to see a really experienced rheumatologist, you will not regret it. It sure saves stress and frustration later. Do you have a good PC doctor who will care for you in the meantime? Or could he get you in earlier?

I live 4 hrs. from St. Louis. I saw a head rheumatologist at Washington U Medical School (don't know if he is still there). He was good, but I was disappointed he wasn't as interested as I had hoped. He had no diagnosis like the expert I had seen in L.A. But he had a female intern who was very, very thorough. I don't remember her name, but she was excellent. I also remember there was a female rheumatologist who taught at Washington U, specialized in scleroderma, and also had a private practice. I don't remember her name, but you can find her on their website.I wished I had seen her.

You might also check out St.Louis U medical school. Not all experts are listed on the ISN list.

Warm wishes,

Dee in MO

#4 janey

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Posted 05 November 2006 - 03:44 PM

Krista,
I couldn't find a scleroderma specialist in your area through ISN, but using the "find a rheumatologist" link I did get this list of St. Louis rheumatologists. You could do some internet research on each of them and see if they have a connective tissue specialty or even call them to see if they have treat scleroderma patients.

Good luck! Finding a good rheumatologist is so important. Please let us know how it goes.
Big Hugs,


Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
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International Scleroderma Network (ISN)