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Astis Trial

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5 replies to this topic

#1 PrincessB


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Posted 16 August 2007 - 02:29 AM


Tomorrow I go in for my first round of cyclophosphomide to 'mobilise' my stem cells, which will then be collected about a week from now. I'm quite nervous about going in now, mostly about the needles as I have a ridiculous needle phobia which is getting worse. This morning I had a bone marrow sample taken from my breastbone and almost fainted from hyperventilation! It is my last day at work today and I'm having difficulty concentrating on tying up the loose ends, what I really want to do is get home, pack and get things in order (and have a nice meal before the hospital food ;) ).

Will write another update after I'm 'mobilised'.

B x
Diagnosed diffuse systemic scleroderma December 2005 (on my 30th birthday, as if turning 30 wasn't enough?!)

#2 Clementine


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Posted 16 August 2007 - 03:01 AM

Wow! Good luck and be sure to let us know how things go. I hope you can find some time to take some deep breaths today and have a great meal.

#3 janey


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Posted 16 August 2007 - 03:35 AM

Certainly can understand your lack of concentration today! You are fixing to undergo something very exciting and revolutionary. It takes a strong person to volunteer for one of these clinical trials, so you go girl!

I hate needle also so when they go to do the "poke", I look away and take a slow deep breath then let it out. It really has helped.

When you feel up to it, let us know how you are doing. You'll be in our thoughts.

Big Hugs,
Janey Willis
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#4 Sweet


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Posted 16 August 2007 - 06:25 AM


Thanks for the update and good luck!!! We will be your cheerleading group!
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#5 lizzie


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Posted 16 August 2007 - 07:59 AM

Hi B
Your post has corrected one of my misconceptions- I was convinced that hospital food in France mut be better than in the UK- but now I know otherwise!

wishing you the best of luck with the treament


#6 jefa


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Posted 17 August 2007 - 06:00 AM

Hi, PrincessB. Hope I didn't miss you, but I will be thinking about you. Like Janey says, those of you who volunteer for these clinical trials are the strong ones. I will be keeping you in my thoughts during your mobilisation. Keep us posted when you can.
Warm wishes,

Carrie Maddoux
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