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Esophageal Dismotility

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7 replies to this topic

#1 Margaret


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Posted 16 August 2007 - 01:51 PM

Hi Everyone,

Today, while driving home in the car, Gareth said "Mom. Food tube better."
I pushed for more info and he said "all gone." "What's all gone?" I asked. "Stuck" "Your food doesn't get stuck anymore?!?!?" "No...all gone. It's better." WOW........OK....does Plaquenil reverse the internal affects of UCTD or sclero? I know his epiglottis is almost back to normal size, but can it REALLY reverse esophageal dismotility?!?!? Man...........I am happy........at least till the next round of blood work comes back!!!

Also.....found out the REAL reason for the 'hard stomach'. Gareth has been drinking that carbonated flavored water that his Dad has taken a liking to. The afternoon after his endoscpopy last week, he said the 'hard stomach' was 'all gone.' Right away, I started figuring out what to eliminate.....dairy, etc. Here it is the carbonated water and the Birch beer floats he's been having all summer. He's had neither since Monday morning and has had no complaints. I guess the carbonation process doesn't sit well with the sclero. Go figure that one out!!!

Take care, Everyone.

#2 Sweet


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Posted 16 August 2007 - 02:23 PM

Great news on both accounts!
Warm and gentle hugs,

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#3 Sherion


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Posted 16 August 2007 - 04:38 PM

That's great news about Gareth! Isn't it amazing what detectives we turn into when dealing with all these problems!!! Continued good wishes for Gareth.


#4 WestCoast1


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Posted 16 August 2007 - 06:52 PM

I am so glad that Garath is feeling well and that the hard stomach was taken care of with a diet change.


#5 jefa


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Posted 17 August 2007 - 06:08 AM

You seem to be having a lot of breakthroughs lately, Margaret. Your diligence is finally being rewarded. :)
Warm wishes,

Carrie Maddoux
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International Scleroderma Network (ISN)

#6 emmie


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Posted 17 August 2007 - 04:42 PM

Good news is great in whatever way, shape or carbonated beverage form it comes!!! And the best thing is that Gareth feels better! And that in turn means you feel 10 times better!!

xoxo emmie

#7 janey


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Posted 17 August 2007 - 04:49 PM

That's such good news about Garath!!!! I don't know about Plaguenil because I've never been on it, but I do know when I start methotrexate 4 years ago, my esophageal dismobility went away. I'm so glad it has help Garath so quickly!

Does Garath have GERD? If so, those carbonated drinks are a NO NO. Good job making that discovery. Hope things continue to improve!

Big Hugs,
Janey Willis
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#8 barefut


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Posted 18 August 2007 - 03:08 PM


I can feel your relief. I am so glad Gareth is feeling better and that some of your worry can go away.