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Other Finger Problems...lol


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#1 luvbnmom3

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Posted 17 August 2007 - 02:18 AM

Do any of you struggle with your fingers sticking together when they're swollen? I used to just have a problem in the heat only, like if I was golfing & it was hard to grip the club & swing it because fingers were swollen & sticky. But yesterday, in the house with the air on (& a sweatshirt...lol) I kept having to get my hands wet while trying to cut potatoes (I know many of you probably have a hard time cutting potatoes period & can't golf) but I kept getting them wet so that my fingers weren't stuck together.

I haven't been diagnosed with SSC, I have Raynaud's & the nailfold capilaroscopy showed dilatated & irregular capilaries but my ANA was neg so rheumatologist said, "We'll call this fibromyalgia for now". He put me on NSAIDS. I haven't been back to see him since November I think.

Now I'm getting these up & down lines above the right side of my upper lip (I'm 33) which is the side of my face I first felt tightening by my eyes, I've felt tightening by my eyes for months now & my nose is shiny & tight & now this morning I noticed when I was putting mascara on (holding mouth open & eyebrows up like a dork) that there are shiny tight areas above my upper lip & when I open my mouth, I feel the skin pulling by the corner of my eyes.

The skin on my knuckles & back of hands gets taut & shiny, feeling it pull over my "outer wrist bone" whatever it's called. But they're not like that 24-7 & sometimes I notice it after washing hands.

Any advice greatly appreciated. I'm exhausted & have PMS....lol, & every month I get frustrated with all this stuff, waking up with swollen achey fingers, etc. Just want to feel better. Oh, I my friggin' ears... always having fullness sensation but there's no fluid in them.

I forgot to mention that I'm getting I think telengiactasias (sp) on lips & eyelids (upper & lower). On eyes looks like a brownish purple spot but when pulled is a vein. On lips, dark areas that when pulled is a vein. Is that part of it all?

#2 lizzie

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Posted 17 August 2007 - 04:22 AM

Hi luvbnmom
I can't believe the lack of action by your rheumatologist! As far as I'm aware you don't have dilated nailfold capillaries with Fibromyalgia and a negative ANA doesn't mean that it couldn't be scleroderma- mine currently is negative. The least he should be doing is following you up every 3-6 months. As you have now also got skin tightening on your face, I think you should contact him asap for another appointment.
lizzie

#3 jefa

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Posted 17 August 2007 - 06:50 AM

Hi, luvbnmom. These changes have a way of creeping up on as slowly until one day we look in the mirror and there is a whole new face staring back. I agree with lizzie that you should make another appointment with your rheumatologist. Organise all of your symptoms, when they happen, etc. on a list to take with you. Many people never have a positive ANA test. Keep in mind, however, that it is possible to have scleroderma and fibromyalgia.
Warm wishes,
Jefa

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