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Recent Blood Work


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13 replies to this topic

#1 Sweet

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Posted 19 August 2007 - 12:49 PM

Hi Everyone,

3 weeks ago I went into a flare from being in the sun too long. I continue to have malaise, increased joint pain and severe fatigue. My primary care physician did some blood work and my c-reactive protein came back higher than normal. A year ago it was 1.3 (normal being 0.0-0.9) my recent results were 11.28

For those of you with an elevated CRP what are your levels?

She stated it was indicative of being in a flare, but it has me a bit concerned. I'll call my rheumatologist tomorrow and make sure he knows the results as well.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#2 Margaret

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Posted 19 August 2007 - 01:35 PM

<< I continue to have malaise, increased joint pain and severe fatigue. >>

Hi Pamela ,

I wish Gareth's would drop to 11.28. His is currently holding at 40....down from the high 90's. But......once again........... I want to thank you for filling me in on how HE may be feeling. He obviously still has the fatigue/malaise......not as bad, but it's still there. I thought he was getting lazy.....laying around and doing nothing!!! If it wasn't for all of you posting your aches/pains/fatigue I never would have known how he feels.

Take care, Everyone.
Margaret

#3 Tammy

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Posted 19 August 2007 - 02:14 PM

I am sorry to hear about the increase in your CRP levels. Know that I will be thinking of you and wishing the best! Please let us know what the rheumatologist says.


(((((BIG HUGS)))))


Tammy

#4 barefut

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Posted 19 August 2007 - 03:13 PM

I'm sorry you're feeling yukky Sweet.

(((((((((((((((Take care and take it easy!)))))))))))))))))))))

Keep us posted.

Love,
Barefut

#5 janey

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Posted 19 August 2007 - 03:22 PM

Sweet,
That fun in the sun really gave your body a huge jolt. I'm sorry to hear that you are still suffering the consequences. I can provide any feedback on the CRP results. It's not a regular bloodtest for me, so no experience, but it does make sense.

I certainly hope you feel better soon.

Big Hugs,
Janey Willis
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#6 nanny

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Posted 19 August 2007 - 05:01 PM

My rumie took my CRP and it was elevated, too, I forget how high. He told me it was an indication of Antiphosphoid lipid Syndrome, or known as Hugh's Syndrome. My CRP goes up and down, he didn't say why it does that., he also didn't send me to a Hematologist. Gizelle

#7 Nelly

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Posted 20 August 2007 - 02:05 AM

I'm sorry you are still not feeling well. Mine is at 3.52 right now (same value scale as yours), and I'm on Methotrexate. It seems like it was around 12 before I started MTX. I would definitely call your rheumatologist, he may want to change some things short term to see if he can get you out of this. In the meantime, take care of yourself!

#8 Sweet

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Posted 20 August 2007 - 04:24 AM

Hi Everyone,

Thanks for the input. I am waiting for the doctors office to open and then I'll call.

Margaret, I have to say that reading your post, made me not worry as much. Mine is nothing compared to Gareth's!

Nanny! Welcome to the Sclero Forums. I noticed this was your first post. Glad you found us and I look forward to knowing you better!!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#9 Gizelle

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Posted 22 August 2007 - 12:04 AM

Thanks Sweet. I usually sigh in with my name. The other day I signed in with my online name and it let me post. I didn't even realize it till I read your post. Yes I'm nanny and Gizelle ( duel personality, lol )

#10 WestCoast1

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Posted 22 August 2007 - 06:10 AM

Hi Pam,
I am sorry that you are STILL recovering from the sun exposure.
I checked my labs for the CRP and the last time it was checked was a year ago and it was normal. The only new labs that have gone haywire are the Anti-CBirl (not sure what this one is) the Iron levels and the Anti-Smooth muscle.

Please let us know what your rheumatologist says about your labs and what he recomends. In the meantime, I hope your energy comes back.

Hugs &
*WestCoast*

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#11 Sweet

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Posted 22 August 2007 - 06:42 AM

Thanks,

I have started to feel better the past couple of days. My rheumatologist was quite concerned about the high CRP and is having my primary care physician fax the results to him today. He's wondering if she used a different type of "high sensitivity" screening than he does and that would account for the huge jump. After he gets the results so he can physically see them himself, he'll call me.

I'll let you know.

Thanks Gizelle for letting me know you're nanny too!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#12 kelowna52

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Posted 22 August 2007 - 01:22 PM

Hi Pamela, I'm so sorry your not feeling well. I don't know anything about the bloodwork you are talking about, but I sure hope you get everything taken care of.

Take Care

Jackie S.

#13 Sweet

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Posted 28 August 2007 - 08:01 AM

Hi, I just got the call from my rheumatologist - finally! and I wanted you to know he said that my high CRP of 11.28 is due to the flare I have been in and not to be overly worried about it. We will recheck it again in Oct. when I see him.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#14 Sweet

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Posted 04 September 2007 - 01:14 PM

Hi All,

I just wanted you to know that I'm still battling this flare. So please forgive me if I am not quick to answer your posts, or miss your post.

I'll keep plugging forward!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)