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Astis Trial


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#1 PrincessB

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Posted 20 August 2007 - 10:34 PM

Hi all,

Thanks for your messages of support before. Lizzie - I think it is better than hospital food in the UK, but still...! (No wine either!)

The chemo went really well, I was lucky not to have any symptoms like nausea. On the third day, which is just a hydration day, I felt so unbelievably good, really cheerful and healthy, but that was because of the drugs they give you to stop you throwing up and now I am tired and a bit flu-y! I have a week off now to recuperate and have growth factor injections to encourage my bone marrow to produce stem cells, then they will start collecting the cells next Monday if all goes well. My dad is coming to visit this weekend, so it will be nice to have some family here. I missed 'my boys' (boyfriend and dog) very much in hospital, but they're so happy to see you when you come out that it's almost worth it.

Hope everyone is having a good day x
Diagnosed diffuse systemic scleroderma December 2005 (on my 30th birthday, as if turning 30 wasn't enough?!)

#2 peanut

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Posted 21 August 2007 - 12:32 AM

You're so brave. I hope your stem cell transplant goes well. I know scientists are looking into stem cell transplant as a hope for scleroderma. It's very exciting to read about the people who make it through the process - many are well, even in remission. May I ask what made you personally choose this route?

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#3 PrincessB

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Posted 21 August 2007 - 07:16 AM

Peanut - I didn't choose to have a stem cell transplant, although that is what I was hoping for when I signed up to the trial. I suppose I had just read a few articles that were more positive about it than the normal treatment of just having chemo once a month for a year.
Diagnosed diffuse systemic scleroderma December 2005 (on my 30th birthday, as if turning 30 wasn't enough?!)

#4 lizzie

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Posted 21 August 2007 - 07:24 AM

Hi B
Really glad to hear that the first phase of the treatment went OK. Keeping my fingers crossed that the rest goes as well. Also glad to hear food not as bad as UK - now not so concerned if have to go into hospital in France (I'm in Paris quite a lot). Shame about the wine though.
Lizzie

#5 janey

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Posted 21 August 2007 - 07:39 AM

Princess,
Thanks for the update! I glad to hear you are doing relatively well considering what you are going through. You sound upbeat and positive which is GREAT! Enjoy your weekend with family and we look forward to your next update.

We'll be thinking of you and wishing you the best!!!!

Big Hugs,
Janey Willis
ISN Support Specialist
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(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#6 Sweet

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Posted 21 August 2007 - 08:14 AM

Hi Princess,

I am so glad that this first leg of your journey was a positive one! You rest up now!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)