Posted 21 August 2007 - 12:19 AM
Posted 21 August 2007 - 05:03 AM
My hands go to dark purple , but have never gone black. Did it stay black or go back to normal color? If it's staying black you should see a doctor.
Posted 21 August 2007 - 05:53 AM
Has your rheumatologist considered you for Plaquenil for your aches and pains? Has he tested you for RA?
Posted 21 August 2007 - 07:27 AM
Posted 21 August 2007 - 08:04 AM
Posted 23 August 2007 - 04:36 AM
Posted 23 August 2007 - 08:11 AM
my raynaud's started about the same time in both hands and feet. my entire toes get a dark violet color when cold, and they burn. especially the little toes.
Posted 23 August 2007 - 01:43 PM
Along the same Raynauds line......can one have Raynauds inside their body (core body) and NOT have it in their fingers or toes? It's 75 today and Gareth is wrapped in a blacket with long jeans on and a short sleeve shirt. When the AC is on, it is set at 76. His hands and feet aren't ever cold......just wondering. He has been this way all summer....wrapped in blankets.
Take care, Everyone.
Posted 23 August 2007 - 02:24 PM
My first Raynauds attack started in the feet a few months ago (my toes and also the bottom of my feet).
My hands also get very cold but have noticed the past week instead of just staying extremely white they can also turn the palest blue colour in my fingers.
Posted 23 August 2007 - 09:31 PM
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host
International Scleroderma Network (ISN)
Posted 25 August 2007 - 01:11 PM
Posted 26 August 2007 - 05:12 AM
Yes, my hands go dark purple/black. I also have lung involvement. What I didn't realize is that when my Raynaud's is triggered in my hands, it is also triggered in my lungs. I take Procardia to control the Raynaud's and I also have an emergency supply of Viagra. It is a scary thing and for me stress can trigger it in an instant along with any type of chill. Gloves and warm weather are your best defense. Best of luck Gidget
Posted 26 August 2007 - 09:08 AM
My rheumatologist suggested Thermabands, which are fleece holders for hand warmers that are worn around the wrist for keeping my hands warm. I thought that I might try them this winter.
Also, have you done any research on Scleroderma Gut? Before I was diagnosis with SSc they cut me open because I was in so much pain (pseudo bowel obstruction). The antibiotics for intestinal bacterial overgrowth have changed my life.
Posted 26 August 2007 - 07:23 PM
You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...
Posted 27 August 2007 - 09:34 PM