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Biomarker for Diffuse Scleroderma skin has been discovered!


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Take My Breath Away


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7 replies to this topic

#1 Sharonvandee

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Posted 21 August 2007 - 07:31 PM

We have had one of those weeks, kids have had this nasty flu and I still jave this cough that just keeps lingering on. I have seen DR's and had lots of test done then this week the DR ring and says that one of the test has come back positive for whopping cough, imagine my surprise and pardon my ignorance as I thought this was something children got and that if you had been vacinated that it was unlikely you would get this. So my poor lung are burning and I am totally breathless and this surely will not help the ILD.

I hope the DR know what they are doing cause I feel like I am rosk bottom, turning blue and toatally breathless with not a sexy man in sight to blame.....haha cept maybe the hubby
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#2 summer

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Posted 21 August 2007 - 10:10 PM

Hi Sharon,
I know how you feel, I have had the flu twice in 8 weeks, the second time around it lingered on for 5 weeks and even now I have a cough and stuffy nose. I ended up moving into the spare room as it was a vicious circle of my son and husband getting it then it would pass onto me again and so forth.

My Pft test which I had done last week had also deteriorated, I'm not getting enough o2 into my lungs, everyone suspects PH, which would explain all the nasty symptoms I am getting.

I hope you and your family are feeling better.

Take care
Celia

#3 Clementine

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Posted 22 August 2007 - 02:04 AM

Sharon and Celia,
Oh goodness ladies. I hope you both feel better soon. Nothing like being sick on top of being sick.

Celia, let's hope it's not PH. When will you be tested for it?

Sharon, I had to laugh when I read you couldn't blame your SOB on a sexy man! At least you have a sense of humor. I hope the little ones are doing alright and being good to their mommy.

xo,
Jennifer

#4 Sweet

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Posted 22 August 2007 - 05:29 AM

Hi,

Wow, I am so sorry to hear that you have whooping cough (AKA Pertussis). It normally is a childhood disease and here in the U.S. children are vaccinated against it. However, over time the vaccine wanes and can leave some susceptible. It's not real common, but I have seen several cases over the past 5 years.

What are they doing for treatment?
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#5 nan

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Posted 22 August 2007 - 09:01 AM

Sharon,
I am so sorry you are so sick. Hang in there!
Nan

#6 Sharonvandee

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Posted 22 August 2007 - 09:03 AM

Hey Sweet

Yes it is a childhood disease and I was vaccinated as a child but like every thing it wears of with me .

They usually treat it with Erythomycin but I am allergic to that so instead they are opting for doxycycline - double dose for a week and see how I tolerate it. It makes me sweat which is a change from raynauds in winter lol there is an upside to everything if you look hard enough.

I got chicken pox at 30 too children bought it home and me and hubby got it real bad. Just happen to be the week my brother passed away and no one would come near me at the funerla no cuddles pout it was the pits, hubby had 100's on his face and said it was the ugliest he had ever felt.

Just hope he doesn't get this
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#7 Sweet

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Posted 22 August 2007 - 10:39 AM

Well you hang in there, make sure you get a lot of rest!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#8 Sharonvandee

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Posted 22 August 2007 - 11:24 AM

hang in there yeah I can do that.

REST um whats that.......... with three kids all down with this nasty flu we have here in Australia this year, it has killed 9 children already so no rest here for now.

but hey I can dream
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!