Early Symptoms Of Crest
Posted 22 August 2007 - 08:17 AM
Had a number of aches & pains for last 12 months & so general practitioner eventually did blood tests & referred me to a Rheumatologist who did more blood tests, X-Rays he diagnosed me with Fibro but felt something else was going on & wanted me to have an Iloprost infusion to help Raynaud's side of things. Had this done in May but my consultant was on holiday so had to see this other one while in hospital. I am now under this new one because apparently he specializes more in Raynaud's he did further tests which show I had some mild tighening of the right side of my heart & also have a tightening mouth & Telangiectasia begining to show on my face.
I'm concerned because he seemed to sweep aside the fact I feel tired alot and have some awful muscle pains in my thighs - it actually hurts to sit because on the front of thight it feels very tight like an elastatic band pulled tight also have pains in hands particularly with thumbs & forefinger. These seem to swell lots in the evening & became stiff to move or grip things, this now aslo happens in the mornings & my feet & ankles are also stiff in mornings admittedly some days are worse than others.
Sorry this is so long winded but feel I need to explain to some one who might recognise these symptoms.
Can any one tell me how long it takes for this to develop? I do appreciate we are all different but it is to get an idea of what may happen.
It does worry me because I am a teacher and the amount of energy alone thats needed does make me wonder how long I can crry on.
Posted 22 August 2007 - 10:35 AM
Posted 22 August 2007 - 06:11 PM
I am sorry to hear about all of the things that you are going through right now. Sometimes the symptoms that we experience are all so jumbled together. A diagnosis (while not fun to hear!) is one step closer to getting the right treatment for you. I hope that you have a good doctor that you respect and trust.
Here is a link to some very helpful CREST links at the ISN:
Keep in touch~