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Update On The Stress/echo


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#1 summer

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Posted 23 August 2007 - 02:52 PM

I had a Stress/Echo done yesterday to try and rule out PH.
My Cardiologist was present as well as the technician who performed the Echo as well as the Registrar.

Well, I only lasted 5 minutes on the treadmill, they had the treadmill on a small incline for the first 3 minutes, then after 3 mins the treadmill inclined more.

My heart rate went up to 175BPM on 5 minutes and I was so SOB and felt as though I was going to pass out.

They then did another Echo to see how well my heart was working. It took me a full 5 minutes to get my breathing under control and even then my heartrate was in the 120 range.

At the end of the session my cardiologist finally spoke to me (he had avoided eye contact the whole time I was there and could not be bothered to at least say hello). He then said "what, you are only having sob today on the treadmill".
I then said " I have told you that I have been like this for months, but the last few weeks it is getting worse, because I have felt like this for some time it almost feels normal!

Anyway, he mentioned that it was not normal for me to be so out of breath and only lasting 5 minutes, he needed to think about what to do next and to make an appointment to see him. He said that he was fully booked out for 2 months and seeing that I have been sob for some time 2 more months wouldn't matter!

I also mentioned that my PFT that I had last week the DLCO levels were lower than 4 months ago. The technician did tell me after I had asked when the Cardiologist had left the room that they got a PA reading before I went on the treadmill, but found it difficult to get one after the session on the treadmill. She wouldn't tell me what it was.

I just thought I would give you all an update on how I went, I guess I shall have to sit this one out and be patient.

Thanks for listening
Celia :rolleyes:

#2 WestCoast1

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Posted 23 August 2007 - 04:23 PM

Hi Celia,
I am glad that you are getting some treatment for your SOB, but it sounds like your doctor could have been just a little more considerate! I hope that this one appointment didn't discourage you. As a result, you will hopfully find a good medication or treatment to resolve your breathing & heart issues.

hang in there and BIG hugs~
*WestCoast*

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#3 LisaBulman

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Posted 24 August 2007 - 01:13 AM

Hi Celia,
Atleast the testing is over. Is there any way you can call the dr.'s office and see if you can be put on a cancellation list? I have done this a few times and it has really paid off. It's worth a try.

Hugs,
Lisa
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#4 janey

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Posted 24 August 2007 - 10:21 AM

Celia,
I glad you are getting these test done! It sounds like they are needed. No - you shouldn't be so short of breath after 5 minutes. I'm very sorry you have a cardiologist with a rotten bedside manner.

I agree with Lisa that you should try to get on a waiting list for cancellations. In the meantime, you might ask around and see if you can get a recommendation for another cardiologist. Also, I would leave a message and ask for a copy of the test results (stress test and ECHO) as soon as it's complete.

Please let us know how you are doing and any results.

Big Hugs,
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#5 Clementine

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Posted 24 August 2007 - 11:39 AM

Celia,
Hope you get it all dealt with sooner than later.
Mean Dr. I would not be pleased. Does he need a reality check?
You are paying him to help you! I am sorry Sweetie,
take care of yourself.
xo,
Jennifer

#6 susie54

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Posted 24 August 2007 - 05:26 PM

Hi Celia,

Sounds like your cardiologist could use some lessons in manners. My new one last time was a little short on the manners too. I am going to give him one more time to be better , if not I am going shopping for a new one.
You have been seriously SOB and should get prompt attention and not have to wait two months. There are priority appointments. In about a week , you should be able to get your results from the hospital or office directly. I think this might relieve you. I cannot imagine having to wait for two months to hear the results. I am sorry you are SOB. I hate that feeling when it hits. And I always fear my DLCO will drop some more. I will be thinking about you . Hang in there. Susie54

#7 summer

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Posted 24 August 2007 - 05:46 PM

Hi Everyone,
I am due to see my Rheumatologist in one weeks time at the hospital, I might be able to get more results from him.

My Cardiologist is supposed to be the best in diagnosing PH, so it seems I might have to just put up with his bad manners for the time being!

It's funny , my rheumatologist is just the opposite to him, he is always quite pleasant and will try and bend over backwards to help me, more doctors should be like him.

Thanks anyway for the responses, it is always appreciated! :)

Celia

#8 susie54

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Posted 25 August 2007 - 02:10 AM

You know Celia, my cardiologist is supposed to be the best with arrythmia's. That is why I was sent to him. I guess we just did not hit it off right. Sometimes I find that after awhile when doctors get to know you they tend to become better and more caring. My rheumatologist started off a little skeptical and now after four years , he is so good an patient. I guess sometimes we have to give each other a chance to know one another. You know doctors have bad days too.
I hope you get a good report. Good luck. Let us know. Susie54

#9 Sheryl

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Posted 25 August 2007 - 08:32 AM

Celia, I would think if your doctor was in the room and watching what was happening the least he could have done was offer you a prescription for an inhaler to help until he sees all the results and decides what would be most beneficial to you. I gave one small complaint about shortness of breath when going up inclines or just going quickly from one end of the house to the other. I was given a prescription for albuteral. This is to take care of any breathing problems I have until further tests are run in October. I sure hope you can squeeze in for an earlier apointment. I hope it isn't anything major. Sheryl
Strength and Warmth,
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#10 Angie

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Posted 25 August 2007 - 08:53 AM

In reply to Mari, in my recent (and very thorough) echo at UCSF, they too were not able to get a PA reading on me. I've been referred to a cardiologist at UCSF who specializes in PAH - I have been having an echo every year for the past few years with my local cardiologist. The test resuls always say "no evidence of PAH" but I've never asked directly what the reading was or if he was able to get one.

I've been having shortness of breath upon exertion for the past few months. I have just been diagnosed with the beginnings of ILD and they are trying to also rule out PAH.

The doctors at UCSF have told me (in the past too) that the gold standard for diagnosing PAH is the a right heart cath --- I've not wanted to go there in the past, but need to have this done now. The good news is that there are some medicines out there now that address PAH. I'm also scheduled for a six minute walk test and some doppler test on my legs -- I have been experiencing pain in my lower legs when I exercise. The cardiologist noted that the pulse in my right foot was weak.

Thank goodness I live new a hospital that has doctors who do research on scleroderma and understand it - that's half the battle!

Take care,
Angie

#11 bookworm

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Posted 25 August 2007 - 07:13 PM

I agree with Sheryl that the doctor could have (and should have) given you something for shortness of breath. I do not have PAH, but have asthma at times and sometimes get short of breath. I have two inhalers, one for prevention, and one -- Albutrol -- for quick relief of shortness of breath. I see no value whatever in having to wait until October to treat the symptom! They can find out what's causing it in due time, but why not treat the symptom in the meantime? If there's actually a reason they can't treat the symptom until they know the cause, then they should tell you.

He sounds like a jerk. Any chance of changing doctors?



Mary in Texas

#12 summer

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Posted 25 August 2007 - 08:38 PM

Thanks everyone for replying.

Mari, If you are having SOB and it is getting worse, there obviously is something wrong. Maybe you should think about getting a second or third opinion.

I know for myself that if It comes down to me needing a right heart catheter, I will have it done. It is better to know now than be sorry later.

It's unfortunate that here in Australia you practically have to fight to get a rheumatologist to listen to you and treat you with meds other than Prednisolone for Scleroderma!

In one of my other posts I mentioned that my rheumatologist prescribed me Prednisolone as I was absolutely miserable and distraught with the pain I was getting in my lungs when breathing and also the sob. I was told that there was nothing that my rheumatologist could prescribe to help me get through the day.

I felt so alone and helpless knowing that no one could help me with my symptoms.
Going to accident and emergency at the hospital was no use, they never knew what to do and didn't know about scleroderma.
My rheumatologist decided to prescribe Prednisolone for me, which I haven't taken as yet, the flare of the sclero has eased some.

So it is either no meds or Prednisolone for me (which have terrible side effects).

Be grateful everyone if you live in the States, I love Australia but I feel as though the medical profession is so behind the times!

Best wishes to you all, and if you live in Australia keep pushing your doctors until you get the treatment you deserve!

Celia