Jump to content


Have you seen Barefut's latest blog: "My Scleroderma and Depression Stole My Son." yet? Do visit and read it.....it's terrific!!

Photo

Puffy And Really Tight Hands


  • Please log in to reply
4 replies to this topic

#1 Shelli

Shelli

    Silver Member

  • Members
  • PipPipPipPip
  • 169 posts
  • Location:San Diego, Ca

Posted 31 August 2007 - 08:24 AM

I just need to vent a little bit. Today my hands are so swollen and super tight. I work on a pc all day and am having a really hard time. Does anyone have any suggestions for relief? I thought about taking a water pill but that probably isn't a good idea.

Any idea's would be great.

Thank you! :unsure:
Take care and stay warm,

Michelle

#2 truman

truman

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 640 posts
  • Location:NJ

Posted 31 August 2007 - 10:32 AM

My internist advises me to continue to take an additional water pill along with my Norvasc which contains a diuretic as well. It works well with no side effects, but you may want to check with your doctors first.
Tru

It is what it is...........

#3 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,260 posts
  • Location:New Mexico

Posted 31 August 2007 - 10:40 AM

I know this sounds weird, but you might want to drink lots of water so you can pee a lot. :D Stay away from salt and salty foods as well.

Unfortunately, swollen and super tight fingers are a symptom. I work on a pc all day as well and it really helps. So work through the stiffness if you can.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#4 Clementine

Clementine

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 691 posts

Posted 31 August 2007 - 04:28 PM

Michelle,
I used to have Michelin Man fingers. They have gotten better in the last two years...not sure which meds are helping with the swelling and redness but something is.

Before I knew that Sclero was causing my puffy hands I took a prescription diuretic. In my opinion, I would not take them unless you really truly need to, like for congestive heart failure. They can actually be more harmful and assist you in becoming dehydrated. Again, whatever your Dr. says, this is just my opinion.

If you do take them make sure you drink a lot of water.

Feel better!
Jen

#5 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,196 posts
  • Location:Minnesota

Posted 01 September 2007 - 10:27 AM

Hi Michelle,

It is a symptom of scleroderma, so do check with your doctor about it.

Like Janey, I've found that drinking a lot (a whole lot) of water helps. Our bodies retain fluid when we are partially dehydrated, so the less we drink the more fluid we retain. So it acts like a diurectic to drink a lot of water (every day, consistently). However, I recommend drinking more heavily in the morning and tapering off in the evening, for less sleep interruption.

Also, seriously avoiding salt, meaning, just about all processed foods.

And remember to exercise the hands, even (or especially) when they feel tight and swollen. Your doctor should refer you to an occupational therapist or a physical therapist, to learn how to care for your hands. They will teach you exercises to do after warming your hands. Even without PT, it is important to keep stretching your hands and to force them to lay flat on the table frequently during the day; otherwise when swollen they will begin pulling inwards.

Holding your hands above your head (actually above the level of your heart) can also help a little as gravity will help pull some of the fluid out.

I've been on a lot of diurectics, but I don't think any of them worked as well as increasing my water intake (consistently).

Caffeine acts as a natural diurectic -- but it is very bad for Raynaud's and also causes heartburn in a lot of people. Grapefruit is a natural diurectic but should be avoided with many medications, so keep that in mind.

Also keep in mind that I'm not a doctor, I have no medical training at all, and your doctor should assess and recommend treatments for you. These are just some stop gap measures that have worked fairly well for me in reducing swelling -- along with proper medical care.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.