Welcome To The Sclero Den
#1
Posted 31 August 2007 - 11:31 AM
We hope you enjoy this new forum in which you will be able to let down your hair a little bit and talk about the things in your life that don't necessarily have anything to do with ANAs and Skin scores, but still have an impact on your life.
Please feel free to post freely on any of the forums. Hugs to all.
Jefa
Carrie Maddoux
ISN Sclero Forums Support Specialist
ISN Sclero Forums UK Chat Host
International Scleroderma Network (ISN)
#2
Posted 31 August 2007 - 01:35 PM
This is a wonderful idea of yours, and I am thrilled with the way you have lobbied for it and set it all up!
I know there's times we all just want to gab about personal stuff that just has nothing to do with medical issues. I like it that we can now jabber freely here, when we want.
You've done super, as always, and thanks for creating this cozy Sclero Den for all of us!
Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099
The most important thing in the world to know about scleroderma is sclero.org.
#3
Posted 02 September 2007 - 01:54 PM
#4
Posted 04 September 2007 - 01:29 AM
I have already added my two cents in here!
Hugs,
Lisa
ISN/SCTC List Coordinator
ISN Sclero Forums Assistant Manager
ISN Assistant News Guide
ISN Fundraiser
International Scleroderma Network (ISN)
#5
Posted 04 September 2007 - 04:43 AM
Thanks again! It's nice to learn more about this big group of wonderful people other than just this disease. It's good to know them on a more personal level and to know that there is much more to them. We even make the best of friends here. My family and I even drove to Ga. to meet a friend that I met on these sclero boards, and she just came to Michigan for a weekend at my home. It was fantastic to go shopping with someone who walks as slow as I do! LOL!
Thank you again, and again!
Warm and Happy to you! Vee
#6
Posted 04 September 2007 - 08:26 AM
Jefa
Carrie Maddoux
ISN Sclero Forums Support Specialist
ISN Sclero Forums UK Chat Host
International Scleroderma Network (ISN)
#7
Posted 04 September 2007 - 03:25 PM
Like Sweet, I like to jabber!
Hope we can share some recipes and original poems as well???
Thank you Thank you!
Barefut
#8
Posted 04 September 2007 - 03:31 PM
This is great! I'm going to have to get on here earlier before I'm so tired that I don't post. It's a super idea. Many thanks for following through with it.
xoxo emmie
#9
Posted 06 September 2007 - 02:21 PM
This has really been so much fun. Thanks again for this little Den you have set up for us!!!
********
#10
Posted 08 September 2007 - 03:20 AM
Its nice sometimes to talk about the positive things that help keep us sane, it also a great opportunity to get to know people on a different level.
So a huge thanks and big hugs
Sharon
Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive
a little bent and broken and almost beyond repair!
#11
Posted 09 November 2007 - 03:02 PM
I don't like rules, so this is the place for me!
Newbie, just diagnosed with Limited SD, too many symptoms to list, work full-time, and suffer a lot!
Hope this is a place to find people to talk to who won't be put off by all my icky sclero problems, who will see me as a person. No family lives near me, no husband, no children, my best friend died Oct. 15. I think I've been too much of a workaholic to develop a social network.
Don't want to be a whiner, want to be a winner!
Best regards to all,
Penny
Memphis
#12
Posted 09 November 2007 - 03:12 PM
Welcome to Sclero Den! I'm sure you'll find a few friends here. It takes a real effort to develop a social network, doubly so when we are sick. There are so many reasons (and excuses) for it...but many perfectly healthy people let their social life slide into disarray, as well.
It's so helpful to find people who understand or can relate to what we are going through, at least in some areas of our life, or illness. I'm glad you're here!
Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099
The most important thing in the world to know about scleroderma is sclero.org.
#13
Posted 09 November 2007 - 10:21 PM
Jefa
Carrie Maddoux
ISN Sclero Forums Support Specialist
ISN Sclero Forums UK Chat Host
International Scleroderma Network (ISN)
#14
Posted 10 November 2007 - 11:36 AM
You will absolutely love your new sclero family - it really does feel like family. And the best part is we all really know what each other is going through!
Really looking forward to knowing you better.
#15
Posted 21 September 2011 - 12:22 PM
And to trot all our emoticons out to play, as well!
Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099
The most important thing in the world to know about scleroderma is sclero.org.
#16
Posted 21 September 2011 - 02:10 PM
Trust me, it's much easier to do than Zumba!!!
ISN Sclero Forums Manager
ISN News Guide for Scleroderma Medical News
ISN Chat Host
International Scleroderma Network (ISN)











