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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 Shelley Ensz

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Posted 01 September 2007 - 10:08 AM

I've recently taken up looming, on round looms. It is similar to knitting and crotcheting, except it is much faster and easier -- and gentler on the hands (and elbows and shoulders), as my carpal tunnel tends to act up with crotcheting but so far (knock on wood), this has not been painful for me.

I've made some winter caps, and I'm finishing a scarf for our granddaughter today. Next I am going to tackle winter mittens, which is much more complicated. If that doesn't work, I'll stick with caps and scarves.

Although it may sound silly, things like knitting, crocheting and embroidery induce the body's relaxation response, just as much as meditation or yoga. That lowers blood pressure and heart rate -- purely naturally, with no pills involved.

Feeling stressed? Take up a calming, repetitive hobby! Also please share some of your favorite hobbies here.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#2 jefa

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Posted 01 September 2007 - 10:51 AM

When I was a kid, we used to take an empty thread spool and hammer headless nails evenly around the top of one end. You worked a piece of knitting yarn from the top with a crotchet hook to go round and round the circle. The finished piece looked like a tail and it kept growing longer through the bottom of the spool. You could make things by coiling the tail and stitching it together in various ways. It sounds like your looming is a larger variation of this. I have been doing some very basic woodburning. I used to make jewelry, but it is getting harder and harder to see the small work. I tried jigsaws, but it hurt standing over the table trying to spot where the pieces fit together. Oh, I find that listening to music on my mp3 player helps to get into the groove when I am doing something physical and it takes my mind off the pain.
Warm wishes,
Jefa

Carrie Maddoux
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(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#3 Sweet

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Posted 04 September 2007 - 04:26 AM

Awww my fellow crafty's! Actually I'm not all that crafty, but I've been a knitter and crocheter since a child. Knitting I have never really mastered, so I make scarfs etc for the winter and have been able to make some quite unique ones for friends.

Now crocheting on the other hand I love! I can understand what you are saying Shelley about the relaxation of it. It's what keeps me going in the winter as I have a bit of a problem with SAD. I make BEAUTIFUL baby blankets, keep them in stock and them give them as gifts. Actually I've even sold them on Ebay.

Carrie, what you said you made when you were little reminded me of when I was a kid. My mom taught my brother and I to crochet and knit, but we would spend hours, just crocheting a huge chain, sometimes even the entire skein of yarn and we'd do all kind of silly things with it.
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#4 Vee

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Posted 04 September 2007 - 04:36 AM

I, also, am a crocheter. Since my first pregnancy in 85. My aunt taught me how to keep me from smoking while I was pregnant. I loved it, and still try to keep up with it everynow and then. I also love to machine quilt, and yes, my Ipod really helps to throw me into my work. I even forget to stop to eat sometimes, and the hubby will come down and remind me. Another thing I love to do is pencil drawings. It is very relaxing to me and is another way to keep the hands moving. I'm looking for a watercolor class at the moment to dive further into the arts and crafts world. When I get a chance I'll put some pics of my "things" in my gallery.

I love this new den! Thanks!
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee

#5 Buttons

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Posted 04 September 2007 - 07:42 AM

I was taught to knit by my mum & made my very first jumper/sweater when I was just 10 years old and have carried on. After the birth of my daughters I also bought an electronic knitting machine & spent hours designing & making them woollies.
I also love machine embroidary & make my family cards for holiday & birthdays. Needless to say they have quite a collection now!

Jefa, I remember doing exactly the same at school, it is so relaxing because its so simple & grows quickly.

Jensue

#6 Helen

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Posted 04 September 2007 - 07:43 PM

I'm not very crafty and now because of my fatigue and stiff hands I am limited to what I can do. I am going to try digital scrapbooking as it is all done on the computer. So far I have bought a software program but haven't done much yet. Other than that I read and play computer games.

Helen

#7 Sherion

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Posted 05 September 2007 - 01:18 PM

Sewing is the thing I most enjoyed doing. My favorite things to make were bridesmaid, prom and formal type dresses. I quilted a little. Since my diagnosis I haven't been able to do any of these things. Between the stiff and sore muscles and not being able to stand over a cutting table has been disappointing. Just the thought of cutting out all those pattern pieces makes my hands hurt. I keep hoping for a chance to do these things again but don't see much hope. Very depressing!!!!

Sherion

#8 peanut

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Posted 05 September 2007 - 06:17 PM

When I was a little girl I would crochet outfits for little bears I would buy at the craft store. In college, I found out I crochet upside down - whatever that means. Recently, I use to basket weave using raffia cute little baskets perfect for pocket change or other goodies. I haven't tried making any baskets recently as my hands are almost too weak to hold a cup. For that reason I only use the plastic cups. I also like watercolor and drawing. My lines are very wiggly from my weak hand but I say it's my style, so it works.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#9 Sharonvandee

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Posted 06 September 2007 - 08:15 PM

Where to start

My newest hobby is miniature dollhouse collection and decorating. I am finding this a welcome distraction from the things happening and I have been taking my time to enjoy looking for beautiful antique furniture for the house. Our dreams of owning our own hojme went out the window when I started to get sick so this is now my dream home.

I also enjoy scrapbooking digital and manual, collecting bears and dolls.

they say some people never grow up well that is certainly true for me :rolleyes:

Last but not least I love to cook guaranteed to cheer me up unfortunately I dont get to enjoy the fruits of my labour anymore. ;)
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#10 Sam

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Posted 08 September 2007 - 02:33 PM

I do embroidary by hand, My grandmaother taught me when I was very young, I also like to paint and draw. And Pamela knows I enjoy cooking that is my hobbies. well my flower beds too.,
Sam

#11 barefut

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Posted 21 September 2007 - 10:51 AM

I am not very crafty either but I guess a hobby of mine is/was anything to do with home improvement.

Can't do much anymore by myself but I still like to dream......I have so many awesome plans for my home and yard. If only I could afford them all! If only I could afford to hire help too!

My next project is painting my bedroom and moving back in, as I've been sharing a closet with my youngest and sleeping on the couch for 2+ years. Can't wait to have my own space!

Anyone up for a painting party? :D

Barefut

#12 lizzie

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Posted 23 September 2007 - 04:40 AM

I don't really have time for a hobby at the moment ( work full-time plus doing Phd) but am planning things for when I finally finsh the studying. The things I most want to do are:
1. learn Italian, its a really beautiful language and as live in Europe may actually get the opportunity to visit Italy and use it.
2. try my hand at card making, I actually bought some materials a couple of years ago but haven't yet got round to trying it (although am not very artistic so not sure how successful I will be!)
3. walk from my home county of Yorkshire to the Lake district . Think it can be done in about a week, staying at country pubs and B& B en route.
4. research local history - this is something that has always interested me (I frequently wish I had made social history my career).
5. write a bestseller!

lizzie

#13 MicheleM

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Posted 30 September 2007 - 11:39 AM

Hi all! I'm a quilter, fabric hog too! I also enjoy gardening, cooking/baking! I've done counted cross-stitch, crochet, knitting - I'll try anything once! But finishing any project brings me so much happiness. Michele
Soft hugs your way,

Michele