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#1 Tammy


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Posted 06 September 2007 - 03:55 PM

I was just wondering if any of you have or had a pituitary tumor? I am still researching for the rheumatologist appt. and went to a site for pituitary tumors and found that the antibodies that are discussed so much on this site are also antibodies that they check in people that have or had pituitary tumors. I was just wondering if there is a connection in some way.

Thanks again for replies~~ Tammy

#2 kiwimum03


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Posted 07 September 2007 - 12:59 AM

Hi Tammy,

I don't know if I am going to be of any help at all since I am still not officially diagnosed with anything, but am being treated for "some type" of connective tissue disease.
But my local general practitioner is still testing me for Cushing's disease which as you probably know is usually caused by either a tumor in the pituitary or adrenal glands. I also have a problem with abnormal lactation, so now we are thinking maybe a prolactinoma??

My Cushing's tests started 8 years ago and stopped for various reasons (mostly because doctors thought it too rare and that my high cortisol was 'probably' caused by stress) but are now resuming tests again.

So I am probably not much help to you at all, my only positive antibodies I have ever had was initially ANA 320 with a Nucleolar pattern, which is now 1:80 with a homongenous pattern.

I go for more bloods next week to see if some new ones come up for the rheumatologist, fingers crossed they guide him somewhere.

What kind of antibodies have you come across in regard to Pituitary tumors?? Are they quite specific?


#3 Tammy


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Posted 07 September 2007 - 07:31 PM

kiwimum03~~ I don't really know much about any of this either. My primary care physician wants me to see a rheumatologist (my appt. is the 4th of next month) for CREST tests and I had a pituitary tumor removed when I was 17 with some damage to the gland.

#4 jefa


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Posted 07 September 2007 - 10:00 PM

Hi, Tammy. The link I edited from your posts was a very long list of endocrine related tests. The section on endocrine autoimmunity did not include any of the 'usual suspects' for scleroderma, though some sounded similar. Write down all your concerns to take with you to your rheumatologist appointment next month, including your history with the tumor. He will ask about your history, anyway, and it's good to have a list for reference. Hugs to you.
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#5 tintin


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Posted 08 September 2007 - 04:25 PM

Never had a tumor, however long before I was diagnosed with lSSc I had Dysautonomia, which is believed to be caused by impaired pituitary function. This has caused lots of blacking out and racing heart issues. I always assumed that this was some autoimmune thing, as everyone in my family has at least two autoimmune diseases, and we don't seem to get anything else.
keep on smiling