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Ventricular Diastolic Dysfunction


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#1 Patty

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Posted 06 November 2006 - 12:31 PM

ventricular diastolic dysfunction is the name that I was given today for what is going on with my heart. I was told not to do much of anythng except for what I HAVE to do. I am not to do any excerssice at all. The Dr I saw today was not even sure its a good idea for me to have my liver biopsy untill we get me on the meds and get them working. I would say what else except that I do not want to know!

Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#2 janey

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Posted 06 November 2006 - 04:49 PM

Patty,
Anytime a doctor tells you to limit yourself, it's scary. I'm sorry your recent diagnosis brought about those instructions. I've been told that a couple of times, but once the treatment gets started and kicks in, I've been given the go ahead to start exercising again - albeit, slowly. I'm in that mode right now in limiting my activity until the new drugs kick in. So please follow your doctor's advice and don't put your body under any undue stress. Did he talk about treatment - what and when? When do you see him next?
Please let us know how you are doing and what's going on to deal with this new symptom. So take it easy, treat yourself good with some pampering stuff like a haircut, manicure, pedicure - anything that makes you feel good without too much activity on your part.
Big Hugs Darling,
Janey Willis
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International Scleroderma Network (ISN)

#3 Heidi

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Posted 07 November 2006 - 03:14 PM

Hi Patty,

I am so sorry to hear of this latest diagnosis and the doctor telling you to basically limit everything you do until treatment can begin. I am with Janey in wondering what treatment will be? and when it will start? Please try to relax and take it easy and keep us posted on your progress.

Warm wishes,
Heidi

#4 Patty

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Posted 08 November 2006 - 09:08 AM

Janey and Heidi,
The Dr I saw at UCONN said that it was a simple treatment. I just need to go on BP meds but the trouble I am having now is that my general practitioner never called them in or called me for that matter. I called his office again today but he's out until Friday so I can't get my RX until then, if he even calls it in then. I do not know what the hold up is as his office has all the info on this because I got copys form UCONN and dropped them off myself on Monday.
I will keep you posted .

Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.