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Sweet And Anyone Else Who Can Help


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#1 Rachelle

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Posted 10 September 2007 - 05:29 PM

Ok, I have had a "sore" on my left index finger hand knuckle since December. It was treated with penicillen a few times and would get a little better than worse. In June it got really infected and I took Bactrim for the first time and this seemed to help. I have since been given Bactrim again and am done with it. The sore is now closed and the swelling in this area has gone down, but now my finger swells on the middle knuckle of this finger. It does not feel that bad and sometimes looks less swollen than other times. The area around the wound and the swelling in the middle finger joint looks purple when I get cold. Is this due to swelling and scar tissue?? Also after the swelling has gone down in the hand knuckle area, it looks like there is bone damage and it sinks in, in the middle and this knuckle looks flatter than it should. I can use it about 90% so I dont know how much damage there is. The middle where it sinks in the skin seems to be stuck there and does not move very freely and pulls. I had a dermatologist appt today and he was so behind I had to leave for class. My most urgent question is this: Should I go back to the dermatologist and let him do the biopsy or should I go to an orthopedic or rheumatologist?? Can knuckle bone grow back or be reconstructed. I need some advice please!!!!!!!!!!!!

#2 janey

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Posted 11 September 2007 - 03:15 AM

Rachelle,
You may have already been to this page, but here is our link to digital ulcers which it sounds like what you have been dealing with. There is a picture of a couple of ulcers on the knuckles, so you'll probably relate to what you see. I'm glad to see that your's has healed. That definitely a big plus! So now, I would think that the route to take is to prevent another one from occurring. If your joint is turning purple that's probably a sign of Raynaud'swhich can cause the ulcers in the first place due to lack of blood flow in the fingers. Do all your fingers turn purple?

If you aren't seeing a rheumatologist, I would definitely start seeing one. Forgive me for not remembering, but what has been your diagnosis at this point?

There are some very effective treatments for preventing digital ulcers. You'll find them on the link I provided. Please talk to your dermatologist or rheumatologist about it. You don't want another one I'm sure. I've never had one, but I sympathize with those of you that have to deal with them. So don't wait around for another to occur. Either go back to your dermatologist or make an appointment with a rheumatologist.

Big Hugs,


Janey Willis
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International Scleroderma Network (ISN)

#3 Sweet

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Posted 11 September 2007 - 05:38 AM

Rachelle,

Janey gave you excellent advice and great links. I second what she says.

Please do keep us posted.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 Rachelle

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Posted 11 September 2007 - 09:13 AM

I have no diagnosis right now. My dermatologist thinks it was just an incorrectly treated infection at this point. I dont agree. So what about the bone damage? Has anyone had this problem? How is it treated? I plan to start visiting a doctor a week to get some kind of answers.

#5 Sweet

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Posted 11 September 2007 - 02:14 PM

I would venture to say what you are describing below:

"Also after the swelling has gone down in the hand knuckle area, it looks like there is bone damage and it sinks in, in the middle and this knuckle looks flatter than it should. I can use it about 90% so I don't know how much damage there is."

- isn't bone damage but tissue damage. Your dermatologist doctor could probably make that final diagnosis. You mentioned seeing a doctor a week to get some kind of answers. Make sure the first one on that list is a rheumatologist.

Hope you get some answers soon!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 lauraw

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Posted 11 September 2007 - 04:13 PM

Rachelle,

It is possible that the infection in your finger has spread to the joint or bone, despite the antibiotics your were on. This type of infection is very serious. The fact that your joint is not red, warm, and very tender is a good sign. Because you have questions about the healing, however, I would strongly recommend that you get another medical opinion.

Good luck,
Laura

#7 WestCoast1

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Posted 11 September 2007 - 05:44 PM

Rachelle,
If your doctor does think that this is Raynaud's than there are several medications out there to prevent further deterioration or future attacks. This is very important to discuss with your doctor. I hope that you find some relief from Raynaud's and let us know how you are doing.

Keep your fingers warm...
*WestCoast*

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