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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 Buttons

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Posted 11 September 2007 - 02:51 AM

Well I have just come back from visit to hospital and apparently it was special clinic for SSc.

My heart has shown stiffening on the right side and I do get out of breath so he's refferring me to the cardiologist.
I am also having problems with rflux etc so he's going to get general practitioner to precribe a proton pump.
I also need nerve conduction test for my right hand he thinks tendons have tightened & are now causing pins & needles - Carpel Tunnel.

I think it may be beginning to hit home that I really do have this disease and its scary.

Jensue

#2 oddone

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Posted 11 September 2007 - 07:52 AM

What did they call it when they were referring to your "right side stiffening"?
Just reading test results, and need some interpretation.
Oddone - Spouse - 38 yr old Husband diagnosed October 2006, Diffuse Systemic Scleroderma
Normal PFT(July 06), ECG(Nov/06)

#3 Buttons

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Posted 11 September 2007 - 08:40 AM

I'm not sure because we don't get a copy of our results in England. He said it was when the heart beagn to relax - but mine is very tight.
Does this make sense?

Jensue

#4 WestCoast1

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Posted 11 September 2007 - 05:51 PM

Jensue,
Hun, I am sorry that this has been so hard on you. You have every right to feel scared...but all in all good care and support from your Sclero pals will keep you afloat.

I am glad to hear that you are being well taken care of at the SSc Specialist's! Take extra special care...and stay in touch.

Big Hugs~
*WestCoast*

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#5 LisaBulman

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Posted 12 September 2007 - 04:21 AM

Jensue,
I am glad that you were seen by a specialist and they are running the proper tests and getting you on medication that will help with some of the symptoms. It is very tough to be in limbo with out a diagnosis. Let the dr.s' run their tests and take care of you. Please let us know of the results and what treatment you will be pursing.

Hugs,
Lisa
Lisa Bulman
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