Jump to content

Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Severe Chest Pain

  • Please log in to reply
7 replies to this topic

#1 Gizelle


    Senior Bronze Member

  • Members
  • PipPipPip
  • 46 posts
  • Location:Canada

Posted 18 September 2007 - 10:07 AM

Last night around 12:15 I started having Severe chest pain, shortness of breath and racing heart rate, between 90 to 115 beats per minute. I took some nitro spray and eventually it went away. I've had this before and was hospitalized for it, thats when the doctor gave me the nitro. A diagonisis was never found. Can the Scleroderma cause this? I will be seeing a heart doctor next month and I will tell him these symptoms. I have to see him so he can order a stress test, my general practitioner isn't allowed to order it. Thanks, Gizelle

#2 kelowna52


    Silver Member

  • Members
  • PipPipPipPip
  • 242 posts
  • Location:Washington

Posted 18 September 2007 - 10:46 AM

Hi Gizzelle, I am sorry your having such bad chest pains. I went through that for two years and they kept on saying it was the Acid Reflux that was causing the pain. It didn't seem to matter what I ate or did the pain was still there, not continuously but definately there. My Gastro doctor I had, when I was living in California put me on Desipramine, and I couldn't believe how fast the pains stopped. I still get them but not nearly as often. I know Scleroderma can affect the sack around the heart. I'm sure many others here will have all sorts of info for you. Good luck to you and I hope things go well with the Cardiologist. By the way I am from Canada to.

Jackie S.

#3 Angie


    Bronze Member

  • Members
  • PipPip
  • 19 posts
  • Location:Coarsegold, CA

Posted 18 September 2007 - 12:14 PM


I too experienced severe chest pains in the past. After a complete cardiac work-up (EKG, Stress echo, and Thallium study), they ruled out any cardiovascular issues. My GI doctor also prescribed a low dose of desipramine (30 mg xday) - which greatly helped. Somehow it blocks/controls the esophageal spasms.

Hope you can find relief soon --- but always error on the side of caution with chest pains. Go to the ER if there is any doubt during an episode!


#4 annkd


    Silver Member

  • Members
  • PipPipPipPip
  • 172 posts
  • Location:Sacramento, Ca.

Posted 19 September 2007 - 05:56 AM

Hi All- I was admitted into the hospital two weeks ago from severe chest pains. All the tests that could be done, were done. The end result was "most likely" esophageal spasms. I'm still having minor sensations and the doctor gave me nitrogylicerin (sp?). I am going to talk to him about the other med you have mentioned. It is really scarey. I had my gall bladder out one week before all this so I thought it had to do with that. Apparently, no. My recovery from the gall bladder removal was tough. I spiked fevers and felt really terrible. I'm up and about now but I feel so fatigued. What a summer!!! If anyone has more info, please let me know. Thanks. Ann

#5 jefa


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 19 September 2007 - 06:24 AM

Hi, Gizelle, Jackie, Angie and Ann

Severe chest pain is very scary. It can be the result of a number of causes. On our heart involvement page, there is a link to an excellent troubleshooting chart. It would be good to have a good read when you aren't in the crisis situation so you can be prepared.

Chest Pain, Acute Severe, sudden chest pain can represent a life-threatening problem. Follow this chart for more information. familydoctor.org.
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#6 kelowna52


    Silver Member

  • Members
  • PipPipPipPip
  • 242 posts
  • Location:Washington

Posted 19 September 2007 - 01:59 PM

Hello all, not to get off the subject of chest pains, but I noticed Ann, that you had your Gall Bladder out. My Gastro doctor. has suggested I get mine out as well. I have alot of Acid Reflux, bloating, gas pains, etc. What symptoms did you have and how long did your recovery take? I would really appreciate your reply. Thanks again.

Jackie S.

#7 Margaret


    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 998 posts
  • Location:Pennsylvania

Posted 19 September 2007 - 02:32 PM

Hi, Everyone ,

This thread is quite interesting in the fact that Gareth's ped doctor gave him Nitro tabs in the spring saying they may help against esophageal spasms. Gareth would complain that his heart hurt but his gastro doctor said it was from spasms.

They have since gone away and he hasn't needed the Nitro since starting the Plaquenil. I guess I never really gave it a second thought as to how good this doctor was!!!

Take care, Everyone.

#8 emmie


    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 321 posts

Posted 19 September 2007 - 05:04 PM

Hi Gizelle and All,

I had an episode of severe pressure in my chest with accompanying pain last fall. This coincided with the time there was a question about PAH, lung function etc. I went through the CT, exercise stress test, echo etc. PAH was ruled out, the stress ruled out heart problems, I had mild ILD.

The cardiologist told me that considering the severity of my Raynauds that it is unusual, but not unheard of, for the blood vessels in the heart to spasm in a fashion similiar to what they do in the fingers/hands when having a Raynauds attack. I also seem to remember reading this somewhere but of couse I cannot remember where.

It is frightening and nothing to ignore.

xoxo emmie