GVHD In Autologous Transplant
Posted 22 September 2007 - 07:04 PM
Dave in FL
Posted 23 September 2007 - 11:31 PM
I experienced hives a few months ago due to a certain med that didn't agree with me. I can really relate to how you are feeling, the itching was unbearable, mine went on for 10 solid days and nights of scratching from head to toe even the mouth and tongue was tingling. I was so bad that the hives had gotten into my lungs (problems breathing), and my stomach was severely swollen, I finally went to the E.R.
I was prescribed 50mg of prednisolone for 3 days, then I slowly began to taper down, which took many weeks.
I was also prescribed phenergan, it helped immensly, also try anti itch lotion on the skin, it has a soothing effect and also helps with the itching.
I hope you get some relief soon and that I helped some.
Posted 24 September 2007 - 02:56 AM
I'm so sorry that you are having these problems! What a roller coaster ride you're on! Have you seen our GVHD page? If not, I've provide the link. You might find something that will help you there.
I don't know if it will help, but I found Serna, an anti-itch lotion to be the absolute best. My husband used it for psoriasis (recommended by her dermotologist) and I've used it for Xerosis and other times when I developed a severe rash that drove me nuts. I hope you can find some relief from this rash. Other than the rash - how are you feeling?
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International Scleroderma Network (ISN)
Posted 24 September 2007 - 04:37 AM
So sorry to hear that you are having to go through this! My only advice for some temporary relief is a collodial oatmeal bath. There's a popular brand I will PM you. I used it for my kids when they had chicken pox. Maybe you have already tried it?
Anyway, I wish you all the best in finding relief SOON and hope you can find something besides the prednisone.
Posted 24 September 2007 - 03:34 PM
I was just thinking about you the other day and I was wondering how you were doing. I am so sorry to hear what you have been going through. I can't imagine! One time I had an allergic reaction to an antibiotic and I thought I was going to lose my mind. I scratched so hard that I made bruises!! Mine only lasted a week. I don't know how you haven't totally lost it. Hang in there and I hope that you can find some relief soon.
Posted 24 September 2007 - 04:27 PM