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Thank You Re Benefits

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#1 scampie5


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Posted 23 September 2007 - 09:35 AM

Hi thank you for advice on benifits I will hold out a bit longer as I am looking after my mum with the help of my sisters and working so maybe just to much at the moment , I also had lung fungtion test and there is a change from last year by about 20% however we dont think it was that much as I was being very childish and refused to carry on doing them I just did not put my best into it also had gon down on my steriods and had to re up them for got just how much I could ache and feel like I have flu I expect my rheumatologist will be in touch next week and I will have to do it again I hate this test I am also having a bone density test on Wednesday im getting really fed up with hospitals and tests and at the moment not a very good patient oh well chin up dont know what I would do with out this message board to let of a bit of steam take care all Lynn

#2 Clementine


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Posted 23 September 2007 - 04:42 PM

I hear ya. The medical stuff gets old fast. Hang in there and take care of yourself, as well as your Mum. Hopefully your lung tests results decreased due to not giving it your all. They are so frustrating but if you aren't really really trying, it's going to show in your results for sure. Smile Sweetie.

#3 barefut


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Posted 25 September 2007 - 09:27 AM


Just a note to say hang in there and take care. I know days when you just feel like saying, "so what!" or something of the sort.... :P

Don't give up. Go to your next PFT with the wind in your sails!

Wishing you the best.

Know we are here for you. You're in my toughts.


#4 janey


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Posted 25 September 2007 - 03:48 PM

I'm with you. The pft is my least favorite test. I always cough and have to do each part of the test 2-3 times (whatever is allowed). The last comment is always "had problems getting through test because of cough." UGH!

In reference to all the testing, the number of tests you need to get initially are numerous, but necessary. You need to know what is and what isn't happening. Catching things early is so important. The amount of testing does decrease after a while so hang in there. Stay strong Darlin'.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)