Posted 24 September 2007 - 06:09 AM
Does it mean anything when the skin thickening moves to the trunk?
Posted 24 September 2007 - 07:50 AM
Normal PFT(July 06), ECG(Nov/06)
Posted 24 September 2007 - 09:34 AM
Posted 24 September 2007 - 10:33 AM
I agree. I was first told that I had limited sclero, back in '98. After being seen by one of the top sclero specialists last year, he informed me that I had diffuse, because my chest skin was involved. Anything other than the hands, feet, face and neck, falls into the diffuse category. At least that's what I was told.
Warm and Happy to you! Vee
Posted 25 September 2007 - 07:09 AM
Jefa, no I have no skin involvement and am 99% sure I never will. You'll never guess...one of my Internet friends has skin involvement and it is now on her trunk. I told her to join here, as it's a wealth of information. I honestly don't know how people with Scleroderma can NOT be a member here.
So, I was helping her.
I am all good!
Posted 25 September 2007 - 09:30 AM
Posted 26 September 2007 - 01:37 PM
You ae so right. Such a fantastic siite with "our family" of conditions. I would have been lost had I not been surfing and found this family. I was so alone, disillusioned and lost. This group is a godsend and my reason to cope. love you guys..........thank you, thank you, thank you
It is what it is...........