Jump to content

Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Am I A Wimp

  • Please log in to reply
14 replies to this topic

#1 jaxs


    Silver Member

  • Members
  • PipPipPipPip
  • 112 posts

Posted 25 September 2007 - 01:23 AM

hey there,
as I recently posted my doctor had started me on theses tablets called methotrexate, my first week was ok, I felt fine, then the second week I took them on the tuesady,and friday morning at 2.30 I woke up got my self a drink went back to bed and then I dont know what happened, I was very dizzy and felt like I was put on a fast spin in a washing machine....i was vomiting and could get ut of bed. that last for 11, 1/2 hours I was very ill doctors says might be a reaction to tablets and told me to take them again the following week, of course I didn't as I felt scared and out of control , I feel like a human guinea pig......and becoz my doctor was unsure what had happened I dont trust taking them again, I ask my self am I a wimp, but I dont want to feel worse than what I am already feeling so maybe after all I am a wimp for not trying the tablets :( ... thanks for listening jaxsxx
live life for today and not for tomorrow

#2 LisaBulman


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,135 posts
  • Location:Massachusetts

Posted 25 September 2007 - 01:38 AM

Hi jaxs,
No you are not a whimp! I don't blame you for not wanting to take the meds again but it could have been something else that caused you the "spinning" feeling. Maybe someone else on here who has take methotrexate can help with side effects that they experienced. Have you talked to your dr waht your next course of action will be if you decide not to take this?

Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#3 Michelle2


    Silver Member

  • Members
  • PipPipPipPip
  • 160 posts
  • Location:San Diego, Ca

Posted 25 September 2007 - 04:29 AM

Hi Jaxs~

You are no way a WIMP! You're going thru enough without having to deal with that. I would call my doctor back and let him know that something needs to be prescribed.

Hang in there!
Take care and stay warm,


#4 sophie


    Bronze Member

  • Members
  • PipPip
  • 11 posts
  • Location:Arizona

Posted 25 September 2007 - 04:33 AM

Hi Jax,

I started on Methotrexate 6 weeks ago. After the first weekly dose all I noticed was a little nausea and fatigue the next day. I took the pills with lots of water. I have not had any problems until my last dose on Sunday. I was very nauseated and dizzy but I realized it was because I did not drink lots and lots of water this time. I really think that the water helps to metabolize the meds better. Other than that, I have felt fine and I have also noticed that my hands are less swollen than they have been for a long time. I have Limited/CREST.

If you were having a reaction to the meds I think it would have been sooner than 3 days. Might have been a stomach virus that hit that quickly. Hope this helps.

All the best,

#5 barefut


    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 25 September 2007 - 05:13 AM

Hi jaxs,

No, you're not a whimp! That feeling stinks! Sounds like you experienced vertigo. I've been there, done that, not fun.

Since you took the pills for a week and were okay, maybe the vertigo was just an unrelated coincidence? I understand though, about you not wanting to take any chances...

I have never taken methotrexate though so maybe someone else who has can give you a better idea of its side effects. Or look it up online.

Good luck,

#6 janey


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 25 September 2007 - 05:51 AM

I ditto the others - a whimp you are NOT! How are you feeling today? How long did it take for the nausea to go away?

I took MTX for 3 years, starting with the pills, then going to the injections. The pills did give me a little nausea the day after, but never 3 days later. As Spanky mentioned, taking the pills with lots of water and continuing to drink lots of water for a couple of days after really helped. My feeling is (but I'm no doctor) is that you had something else entirely going on. The MTX probably lowered your immune fighting capability (as it is designed to do) and you may have picked up a 24 hours bug of some kind. That was a pretty long delay between taking the pills and getting the reaction. To be perfectly honest - I handled the injections with no problem. Once I got over the "giving myself a shot thing", it was a piece of cake. The needle is so small that you can feel it. Also, the injections don't go through the digestive tract and are easier on the liver than the pills.

MTX has been around for decades and is a standard treatment for many connective tissue diseases; however, like any medication - people react differently. I couldn't handle Imuran and a lot people tolerate is quite well. I don't know how it will work for you, but for me, MTX was the drug that slowed the progression of my disease once I was diagnosed and it did it within weeks of starting it. So you might consider giving it another try; however I do understand your hesitation.

Please let us know how you are doing.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#7 Clementine


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 25 September 2007 - 06:14 AM

I believe anyone with sclero is a hero. In no way are you a wimp.
You are strong in your own right. I hope you get some relief soon!

#8 WestCoast1


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 554 posts

Posted 25 September 2007 - 06:58 AM

Hi Jax,
I am also wondering how you are doing today?




    Bronze Member

  • Members
  • PipPip
  • 28 posts

Posted 25 September 2007 - 08:19 AM

Hey Jaxs! You should not think of yourself like that! I truly believe we are some of the strongest people out there!! ANYONE that lives with a chronic illness has strength only we know and understand. :> I have been on Methotrexate for almost 2 years. Six tablets every Tuesday. At first, I did have the upset stomach, nausea feeling. I would suggest eating a good breakfast and drink more water than you usually would. My Dr. had also said that if my stomach had a problem tolerating all six tabs, that I could break them up throughout the day. I guess everybody is different. If I were you, I would consider giving them another try. Having JUST started MTX, you didn't really it a chance to work. I can tell you in my experience, it helped me tremendously!!! From the morning stiffness to the swelling, and especially the pain in my knees. It is not like death climbing my stairs anymore :D Whatever you decide, I wish you good luck!!

Everybody stay strong & well!!

Kelly B.

#10 Sweet


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,890 posts

Posted 25 September 2007 - 11:09 AM

Oh goodness, you are not a whimp! Anything but!

I have to wonder however, if you are drinking enough/eating enough when taking the pills. Have you continued with them? How are you feeling now?
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#11 Margaret


    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 998 posts
  • Location:Pennsylvania

Posted 25 September 2007 - 01:53 PM

Hi Jaxs ,

If you are a wimp, then I would be standing right next to you!!! Could it possibly be a rare allergic reaction? Have you talked to your pharmacist about it. Many times they are a valuable source of information.....stuff about meds that many doctors don't know.

Take care, Everyone.

#12 whirlway


    Silver Member

  • Members
  • PipPipPipPip
  • 104 posts
  • Location:Washington State

Posted 25 September 2007 - 10:25 PM

Jaxs, you are not a wimp. I completely understand what you are going through. I tried metho also, and it made me so sick. I took it for a couple of weeks, thinking it would pass, but I became so ill I could barely get out of bed, so no more metho for me. Some people cannot take certain drugs. The next drug I was given was immuran. Tolerated that well and took it for a couple of years before it became ineffective. Now I am on 2000mg of cellcept.
Good luck.

#13 jaxs


    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 112 posts

Posted 05 October 2007 - 05:41 AM

thanks for you all replying , I was a bit groggy afterwards for a couple of days but back to normal (well wot ever that is haha) I still dont see my doctor till november so im not on nowt again and just waiting to be seen :huh:
live life for today and not for tomorrow

#14 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 07 October 2007 - 07:38 AM

I'm in agreement with what Janey is saying... in that injections don't come with quite the same problems that the pills seem to. Like you, I was on the pills first, going then to the MTX in juice... gave me adversion to juice for quite some time after, due to the taste... probably psychosymatic (plz forgive my inability to spell today :rolleyes: ). Anyway, I was injecting MTX for several years.. I always experienced nausea for about three days following injection, but that's just me.
I do want to say that MTX does compromise the immune system, so what you've been told... that you may have had a bug... may have been the case... or it could be the side effects of the MTX. Either way, I hope you can feel better... past the symptoms, j :) axs

Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#15 MicheleM


    Silver Member

  • Members
  • PipPipPipPip
  • 119 posts
  • Location:Atlanta, GA

Posted 07 October 2007 - 12:54 PM

I had a similar experience when I was diagnosed with PAH. The pulmonologist prescribed Viiagra and I took it. Oh my goodness - I had the worst migraine in the world about the second day, but stupid me took them again because they were prescribed by the doctor who was so solemn about my condition. By the third migraine it was so bad that I couldn't move ... I mean I couldn't move from the excrutiating pain. I decided I didn't care what else happened I wasn't taking that drug again. Then the headache went away. Imagine that. My husband was very frustrated with my not taking the drug. When I got to the specialist down at Emory Univ. in Atlanta, he told me the doctor made a bad call. That my pressure was in the high 30's - I think 38 - and that they didn't prescribe Viiagra until it reached the mid 40's or higher on a routine basis over a period of six months. He said I did the right thing by listening to my body!!!! I told him if it were the only treatment I wasn't taking it because I value my quality of life and it had 0 quality on that drug. So my advice is seek a second opinion but I wouldn't take that drug again. Besides methotrexate is a very harsh drug on your system and there are much better choices out there. I'm currently exploring cellcept and embrel which are much better tollerated in the body re side effects. Please don't feel like a wimp - I'm sure you are a very strong person who is smart enough to listen to yourself! Feel better soon, Michele
Soft hugs your way,