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14 replies to this topic

#1 Terri

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Posted 26 September 2007 - 09:10 AM

Does any one know if it is okay with scleroderma to receive a massage?

#2 Sweet

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Posted 26 September 2007 - 10:11 AM

Hi Terri,

Welcome to the Sclero Forums, I'm so happy you are here.

I get weekly massages and it helps me tremendously with pain.
Warm and gentle hugs,

Pamela
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#3 Vee

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Posted 26 September 2007 - 10:46 AM

Terri,

Welcome to the family! I get massages as often as I can afford them. Sometimes I really feel it the next day, but it seems to help with mobility. But I do remember reading somewhere that we shouldn't get the deep muscle stimulation kind of massage. Check with your doctor, just in case.
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee

#4 Sam

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Posted 26 September 2007 - 12:39 PM

yes you can and boy does it feel good, if you get a deep massage please drink lots of water (Fluids) afterwards..


Sam

#5 jefa

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Posted 26 September 2007 - 07:54 PM

Hi, Terri, and welcome to the ISN Sclero Forums. Massage is a wonderful stress reliever. This from our page on Alternative Therapies:

Massage: A Hands-On Approach to Improved Health. What therapy can help decrease pain, anxiety, stress and depression? It can help patients with arthritis, lymphedema, fibromyalgia, scleroderma, pregnancy and psychological disorders. It's massage one of the oldest forms of therapy. Today, there's growing interest in the benefits of massage used in conjunction with other conventional medical treatments. Newswise. Mayo Clinic. 01/06/05.


Warm wishes,
Jefa

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#6 LisaBulman

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Posted 27 September 2007 - 02:53 AM

Hi Terri,
Massages are great! I don't get them very often but when I do I love when they dig and get all the knots out! I am usually sore the next day but it is so worth it. :)

Hugs,
Lisa
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#7 janey

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Posted 27 September 2007 - 03:45 AM

Hi Terri,
Welcome! What a great question to start posting with.

I get massages periodically as well as full body salt glows where they exfoliate all the skin on your body. Both are marvelous!

Big Hugs,
Janey Willis
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#8 kelowna52

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Posted 27 September 2007 - 05:47 AM

I just wanted to mention Acupucture, I just started that last Monday. I felt good for a few hours after. The RN that did the treatment said she only does one treatment a week which sounded kind of limited to me, so we'll see. I have had massage treatments as well and it seems to work for a few hours and then it's all back. I have really bad pain in my shoulders and neck. I have had Cortisone Injections done twice and I actually think the injections made it worse. I have so much pain it's constant now. I wish I could do something to relieve this pain. Any suggestions I am open to.

Jackie S.

#9 susie54

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Posted 28 September 2007 - 01:49 AM

YES< YES AND DOUBLE YES but make sure they don't go to hard. Especially on the arms and legs. I get one every month. If you can treat yourself , get a hot stone massage in the cold weather and don't plan anything else the rest of the day. It will relax you so much , you can't do anything else but rest.
I think it improves my circulation and overall feeling better. I highly recommend it. Susie54

#10 bookworm

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Posted 28 September 2007 - 06:48 PM

Jackie,
I have pain in my shoulders and neck, too. Mine is not constant, but I do seem to have it every night. I use heat and it really helps me. I have a heating pad and I also use hot corn bags -- 8-inch square "bean" bags only these are filled with corn. You microwave them for a couple of minutes and they feel wonderful and they sort of mold to fit whatever area you are trying to warm -- I.e. neck, ankle, wrist.
Sometimes I also use a liquid rub that has capsacien (sp?) in it. I buy the stuff at the Veterinarian supply! I think it says it's for horses. My doctor actually told me about it and said someone with bad arthritis told him about it. It helps me. Private message me and I'll tell you the name of it.

Mary in Texas

#11 jefa

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Posted 28 September 2007 - 09:38 PM

Hi, Mary. Yes, capsaicin is what makes peppers hot. You can also get it in forms designed for human use over the counter and by prescription. My mother got a spray version from a shopping channel. Here is a Mayo article on Capsaicin (Topical). The article describes several uses but emphasizes that it is for pain relief, nto a cure. My husband and father both used Zostrix for their postherpetic pain after shingles. The problem with all of these capsaicin containing treatments is that you must clean your hands very well after using it as it can be very irritating if you get it in your eyes (or other sensitive body parts).
Warm wishes,
Jefa

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#12 bookworm

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Posted 29 September 2007 - 05:58 AM

Hi Jefa,
You do have to be careful not to get it in your eyes -- probably a good idea with all salves and creams! It's never irritated my hands, though. And, while it's not a cure, Arthritis Today magazine ran an article that said that capsaicin not only makes it feel better, but it also shrinks swelling and thus is actually helpful as a treatment, so to speak. In fact, I believe it said some of the other creams -- like Icy Hot -- had that effect also. None of them feel as good to me as my capsaisin though, and I've tried several.

Mary in Texas


#13 jefa

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Posted 29 September 2007 - 06:12 AM

Yeah, it says in the Mayo article that if you put it on your hands for arthritis, not to wash it off for at least a half hour. I would imagine some cotton gloves would be handy to wear during the treatment.
Warm wishes,
Jefa

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#14 Kiwi

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Posted 29 September 2007 - 02:29 PM

I get massages as often as I can - great for circulation and toxins.
I also try to get into hot pools or spas as often as I can
Kiwi

Diagnosed 2006 - Diffuse Scleroderma
Skin and lung involvement

#15 debonair susie

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Posted 02 October 2007 - 12:45 PM

I haven't had a massage for years... I'm talking 30+ years... I'm sooooo glad my birthday's just around the corner ;)
I'm going to take my sister-in-law with me, becuase I KNOW my hubby wouldn't go B)

Hugs,
Susie
Special Hugs,

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