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Endoscopy Results


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#1 VEGAN

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Posted 02 October 2007 - 08:48 AM

After my endoscopy today the doctor said I have "flat duodenal mucosa", gave me a picture & everything. I was suspecting celiac, but he said it's not likely because it's so uncommon (yet another doctor who doesn't seem to really know - it's much more common that people think, estimating around 1 in 300 with only 3% of people who have it being diagnosed - it's one of the most underestimated, least diagnosed diseases)

Anyway, I asked him if anything else besides celiac causes flat duodenal mucosa. He said nothing. What say you?

#2 jefa

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Posted 02 October 2007 - 10:10 AM

Hi, VEGAN. I can see how it could be confusing after reading the site's page on Celiac and Gluten Sensitivity since several numbers were given depending on the strict definition. Hopefully you will find some useful information at that link that you can share with your doctors. I did a quick search on "flat duodenal mucosa" and I did see other causes, one in particular on Familial adenomatous polyposis (FAP). The Mayo article says it is "a genetic disorder that left undetected, almost always leads to colon cancer by the time a person reaches his or her 40s. Screening and genetic testing, however, can help detect this condition early in life and greatly reduce the chances that cancer will develop." The other things were in mixed diagnoses. Please let us know what you find out.
Warm wishes,
Jefa

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#3 Margaret

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Posted 02 October 2007 - 02:42 PM

Vegan ,

I have to agree with the doctor. Gareth has bx's all the time to R/O celiac disease ....every time he has an endoscopy, basically. Have you had blood work done for CD...I think it's IgA autoantibodies? That is what they look for, though....flattened walls in the duodenal area.

Take care, Everyone.
Margaret

#4 VEGAN

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Posted 02 October 2007 - 03:57 PM

My IgA was low, but the GI doctor said the bloodwork done to test celiac was negative. But, every once in a while the results are wrong. I have all the symptoms of celiac, and now the flattened walls.