Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

I Cant Take It Any Longer


  • Please log in to reply
13 replies to this topic

#1 Sam

Sam

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 640 posts
  • Location:Delta, Ohio

Posted 06 October 2007 - 12:57 PM

:( It hurts so much and I am so tired of it. My neck and my left shoulder all the way down to my hand . I know something isnt right, I can't shave under that arm, I have a hard time getting dressed and today I couldn't do my hair. That isn't going to work out very well. I didn't sleep well last night at all and I had gotten up and put nice smelly ben gay on. It did nothing for me. Today I had put on a Absorbine Jr. pain relieving patch and nothing..I wish I had something to knock me out until Monday morning.

You know a few years ago it was my left hip where it hurt so bad , that I had to keep getting shots, it seems to me it's always my left side that is affected. So is there anyone else that feels one side is more affected than the other?

Well I am going to go lay down it has a been a long day for me. Take care, Sam ;)
Sam

#2 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 06 October 2007 - 01:28 PM

Sam,
I'm so sorry that your shoulder is still causing you so much pain. Please, pamper yourself this weekend and don't do anything you don't absolutely have to do. I hope you have an appointment on Monday to see if they can figure out what is causing this. Maybe soak in a warm bath a few time or place a heating pad on your shoulder?

Every once in a while my left hip and knee act up, usually at night. Sometimes the pain gets so intense that I have to get up. But just walking around helps to make it go away. I wish yours was that easy. Let us know how Monday goes.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#3 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,261 posts
  • Location:Minnesota

Posted 06 October 2007 - 02:14 PM

Hi Sam,

I had a pinched nerve in my neck a few weeks ago. It caused a lot of pain in my left arm, plus I was unable to use it. I couldn't lift it up or to the side by itself (only by moving it with my other arm).

The first doctor I saw said it was tendonitis; but I'd had tendonitis before (in my right arm) and the onset was very gradual, certainly not this sudden nor even this painful or so restrictive in movement.

The second doctor said she didn't think it was tendonitis but she didn't know what it was for sure and wanted me to have an MRI. I asked if I could wait a week for the MRI, to see if it might go away, and she agreed.

A few days later, my neck felt very tight. I gently but firmly stretched it for a full half hour straight (while I was answering forum messages, LOL), and voila, my entire arm came back to life! I was absolutely thrilled, and triple delighted that I avoided a whole ton of physical therapy (for the misdiagnosed tendonitis) and MRI stuff (which would have just shown I had a pinched nerve).

It is such a joy it is to be out of that pain and have the use of my arm back again. I really think it would have been more functional and less painful if it was broken. So, I empathize with you, and I hope that something helps diagnose and make it go away....soon!
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#4 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 06 October 2007 - 04:37 PM

Sam,
I am so sorry that you are hurting so much!!!!! When I go thru spells of intense pain it does always seem to be one sided, but I can't figure out the reason. I do hope you can find relief soon.
Nan

#5 Kamlesh

Kamlesh

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 315 posts
  • Location:Dublin, CA

Posted 06 October 2007 - 05:07 PM

Sam,

I am so sorry that you need to go through it. I am sure you have explored many options, but please do not be discouraged. You have to find a solution to make your pain tolerable.
Please don’t be discouraged. You have to keep on trying till you find a solution. We are all here with you.. Keep your hopes high and you will get relief.
Kind regards,

Kamlesh


#6 emmie

emmie

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 321 posts

Posted 06 October 2007 - 05:36 PM

Hi Sam,

I had a very similiar problem several years ago. I have degenerative disc disease in my cervical spine (a fancy way of saying arthritis in my neck, I believe). It was affecting two discs in my neck and pinching nerves as Jeffa mentioned. I was unable to turn my head very far in either direction and my right side was affected in the same way; pain across my shoulder, down my arm, into my elbow, down my forearm, into my hand and "out" my finger.

My doctor tried muscle relaxants, anti-inflamatories (this was before I developed the anaphylactic reaction to them), and finally prednisone. Nothing helped. He finally sent me to a neurologist who got to the root of the problem. He put me in a soft neck collar and I just had to wait it out. Not very encouraging to you, but it did finally go away. I have occasion problems with it but nothing like that original time. Let us know what happens on Monday. In the mean time, try heat. And good luck.

xoxo emmie

#7 susie54

susie54

    Silver Member

  • Members
  • PipPipPipPip
  • 259 posts

Posted 07 October 2007 - 02:39 AM

Hi Sam

I have alot of neck shoulder pain and I finally broke down with cortisone shots that help me for now. I wanted to tell you a procedure my brother did for continuous pain in his neck . He has arthritis and nerves were the problem of his pain. Finally after trying EVERYTHING, they went in surgically and deadened some of the nerves that caused the pain. He is so much better now. I think this would be a last resort but might be something you could think about.

#8 lizzie

lizzie

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 497 posts
  • Location: UK

Posted 07 October 2007 - 04:49 AM

Hi Sam, You have my sympathy, I have suffered neck and shoulder pain in the past ans know that it can really get you down. Two things helped for me:
1. Ibuprofen gel ( a non steroidal anti inflamatory gel) rubbed into the neck and shoulder area (I'm not sure whether it is called Ibuprofen in the US).
2. Chiropractic.

Hoping you are soon pain free
Lizzie

#9 Sheryl

Sheryl

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 07 October 2007 - 06:19 AM

Sam, I hope you are able to block most of the pain this weekend. Hopefully, you won't have a problem getting into the doctor tomorrow for an apointment. I also have the shoulder pain on the left side. Two years ago I couldn't walk up and down stairs very well because of intense pain. Also left side. Wonder why it effects the left side mostly with us? I usually sleep on my right side, so not sure what the reasoning is. I bumped a wall coming out of my bedroom last week. Intense pain radiating from my elbow up to the shoulder. Wierd isn't it? Lasted about 25 minutes then went away. Yours sounds like it doesn't go away. Something is pinched somewhere. Let us all know what the outcome is. Best of care for your ailments, hopefully tomorrow. Sheryl
Strength and Warmth,
Sheryl

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)

#10 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 07 October 2007 - 07:03 AM

It sure would be nice if you could get relief the same way Shelley did... through stretching while at your 'puter.... I think I'm going to try that too. I've been told I have bursitis in my right shoulder... I experience what many of you have, it sounds like.
I wish us all a quick recovery from this shoulder pain :)
Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#11 kelowna52

kelowna52

    Silver Member

  • Members
  • PipPipPipPip
  • 242 posts
  • Location:Washington

Posted 07 October 2007 - 07:08 AM

Hi Sam, I totally understand how you feel. I'm sorry your going through this. I have pain in my, neck, shoulders, all the way down my left leg. It feels like a Migraine in alot of my body. I'm going to see my rheumatologist on Tues., there must be something they can do for this pain. I use a topical analgesic, it helps a bit but it sure doesn't take the pain away. Well, good luck to you and I will let you know if my rheumatologist has any suggestions. I am on my second treatment of Acupuncture, still nothing. Take Care.

Jackie S.

#12 truman

truman

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 625 posts
  • Location:NJ

Posted 07 October 2007 - 12:01 PM

Hi Sam:

Seems to be my right side. My arm and foot. The pain has subsided tremendously since my general practitioner signed me out for two weeks. I actually located a Shop Rite who delivered all my groceries yesterday. Sam, I refuse to live out my life this way. This is all temporary for me. When my foot gets healed, I'm making major changes. I'm going to start living life a little, instead of living for my children who have left and will not acknowledge my illness. I'm going to put forth all my energies, and if I fall and/or tumble back, I'm still going forward.

Please believe I feel the pain you're feeling today. The pain can be outrageous. I was so proud that I had the groceries delivered yesterday only to have my dear dog step on my foot not once, but twice! He meant no harm, but WOW!

You are so young and able. You will get beyond this pain. All takes time, energy and ability to believe in the ability to control things mentally.

If it were not for this site, I don't know what mental condition I would be in. This site is great. It has availed me the mentality to accept my condition and allowed me the opportunity to meet an entire host of friends who share my affliction. Please.........feel free to email me. I just want you to feel better and go in the direction of ahead, beyond and better.
Tru

It is what it is...........

#13 KarenL

KarenL

    Silver Member

  • Members
  • PipPipPipPip
  • 213 posts

Posted 12 October 2007 - 08:07 AM

Hi Sam,

I'm a week late and just getting to responding. I feel for you, I have that pain too. It's amazing to me how so many areas of our bodies are affected by this disease and we all experience similar pains. I have/had the neck and shoulde pain too and for me, the chiropractor is a god-send. I was never one for chiropractic, but have become a believer. Good luck, hope you are better by now.
Karen

#14 Michelle2

Michelle2

    Silver Member

  • Members
  • PipPipPipPip
  • 160 posts
  • Location:San Diego, Ca

Posted 12 October 2007 - 11:10 AM

Hi Sam~

I have had a similar problem a few years back. Mine turned out to be a pinched nerve. My primary care physician had me go to a Physical Therapist. It actually worked wonders. I would recommend going back to your primary care physician and insisting that you get a MRI done. You have been suffering much too long.

Good luck to you!
Take care and stay warm,

Michelle