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Did you know that exercise increases inflammation in systemic sclerosis?


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Open Wounds On Finger Tips


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#1 Sharon Marie

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Posted 10 October 2007 - 07:07 PM

Hi Y'all I am a new member and I moved to a warmer climate (Corpus Christi Tx) due to my sclerderma. It has helped a lot although not removed the disease by no means. I was wondering if any of you can share with me topical creams or anything that can instantly take the pain away. I have 3 open wounds where the calcium deposits have tried to escape through my fingertips and it is so painful. I curretly use silvidine. Thanks~Sharon

#2 jefa

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Posted 10 October 2007 - 11:51 PM

Hello Sharon Marie and welcome to the ISN Forums. We are glad you have found us and hope you will find it a great place for information and support. Ah, wouldn't it be nice to find something to instantly take away the pain. I don't have this particular problem but maybe others can share their advice. I am including our link on Calcinosis from the main site which may help. Did you mean Silvadene (Silver Sulfadiazine)? If so, this will not help with the pain at all. Was this prescribed by your doctor? I look forward to hearing more about you and your diagnosis as soon as you have had time to look around a bit.
Warm wishes,
Jefa

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#3 LisaBulman

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Posted 11 October 2007 - 02:02 AM

Hi Sharon Marie,
Welcome to the forums! I am glad you have found us here but I am sorry that it is because of scleroderma. Unfortunately there is no magic pill to instantly take the pain away. I would recommend seeing your dr to try to get something to get the blood moving. I have had great luck with viagra and others on here have used similar drugs to help them You can buy an over the counter neosporin with pain ointment that I use when it hurts. It doesn't take the pain away completely but it does help.

Hugs,
Lisa
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#4 peanut

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Posted 11 October 2007 - 02:46 AM

Hey Sharon Marie,
The ladies are right - there's no instant cure. You can try warm, moist heat. I had 4 ulcers and Revatio, (which is the same thing as Viagra but they renamed it so the pharmacists don't go... why is a girl getting 30 pills of Viagra?) took the ulcers away. I'd ask about it. You could also try Nitro cream - it helps open up the blood vessels.

A hand therapist recommended Coban, the colored wrap you get after drawing blood or giving labs. If you cut it down to like 0.5" wide and really long it wraps better than a band aid and gives good protection. You could even put a bit of cotton under it with antibiotic cream. Just an idea...

I'm sorry I don't have any answers for pain. I know they hurt a lot. I think some people use lidocane or camphor based products. I've never tried them myself.

peanut

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#5 Sharon Marie

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Posted 11 October 2007 - 07:03 AM

Thank you so much for your knowledge. I do use a nitro bid cream to help with blood flow but not as consistant as I should. I have been diagnosis at 25 years of age I am now 43. I am a Realtor and find it difficult to function in an everyday office job. The warrious temps going from in and then outside is hard. Did any of you have trouble obtaining ssdi services ( social security disability)? I look forward to creating a friendship with you all.
Sharon

#6 Sweet

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Posted 11 October 2007 - 09:19 AM

Hi Sharon,

Welcome to the sclero forums. I'm sorry to hear you are having problems with lesions. I hope some of the recommendations you received here will help you!

I look forward to knowing you better. :)
Warm and gentle hugs,

Pamela
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