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Biomarker for Diffuse Scleroderma skin has been discovered!


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Finger Nails


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#1 Bird Lady

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Posted 13 October 2007 - 07:23 AM

Hello Everyone
Does anyone's fingers split and crack on the cuticle. Birdmans are spliting and bleeding.
Thanks
Wife
Hugs for All,

Julie (Bird Lady)

#2 Patty

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Posted 13 October 2007 - 08:31 AM

Before I got a diagnosis of sclero and dermatomyositis mine were very very sore and dry but not bleeding. They are still somewhat enlarged but the soreness is gone.
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#3 peanut

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Posted 13 October 2007 - 08:56 AM

I'm sorry Birdman. That sounds awful. Have you tried rubbing in some vit E oil into the nails and cuticles? Flax Seed and calcium has done wonders for my brittle, thin nails. Folic Acid is another good one for nails.

heath and hearts,
peanut

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my HMO makes me wear a helmet...

#4 Sam

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Posted 13 October 2007 - 10:03 AM

i dont have that problem but my has ridges on the nails and my anil curves down ward like a bird claw.

I would suggest putting on vitamin E on the nail and rub it in. I would do this often. I hope this helps.
Sam

#5 bowbec

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Posted 13 October 2007 - 12:02 PM

Hey Birdman Wife,
I made a lotion from bees wax and it really helps my cuticles! I got the recipe on line and my friend has bees so I got the wax from her. It also waterproofs your hands! There is also a company who makes this but it is kinda pricey. I made mine for hardly nothing, It has baby oil, water, bees wax and borax in it. It was fun to make too!
Hope this helps!
Becky
Diagnosed with Diffuse Systemic Scleroderma May 2005
Raynaud's, GI, esophagus, skin and lung involvement.

#6 Lori-Scleroderma Spouse

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Posted 13 October 2007 - 01:31 PM

HI
Barry has not had that problem. Sorry to hear that Roger is having problems with his hands. Hope things are going well other wise.
Lori
Lori
Scleroderma Spouse

#7 MicheleM

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Posted 13 October 2007 - 02:08 PM

I think the others are on the mark with the vitamin E! It really helps me with mine! My finger tips/nails are turning downward on the sides & my nails tear right there alot! I don't know what to do except cut them close even though it doesn't look very pretty! Hope everyone's feeling better by the time you read this! Michele
Soft hugs your way,

Michele

#8 Sheryl

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Posted 13 October 2007 - 02:37 PM

Birdman, my cuticles also split and snag on things. This time of year they rip open and bleed because of weather changes. Mine hands and feet will stay bad until I leave for a couple months in Florida. They clear right up. My skin has already started to crack around my joints and palms this year. The tiny sores are hard to heal because of bending and stretching of my fingers and palms. I use lanolin oil and aloe plant liquid. This time of year I am constantly applying lotions. I can't stand lotions and creams but we do what we have to do sometimes. Some of the lotions sting and burn. I sometimes think that I keep the bandaid companys in business during the winter months. Use oils when possible. They penetrate deeper and keep skin moist for longer peroids. Hey, I'm the girl that has to sleep with cotton gloves most of the winter because of paper type cuts all over my hands. They also keep my hands warm and retain the moisturizers I use. Let me know if you find something that works great. I am game to try new products. Though I have tried most of the old ones. I also have a parafin wax machine. But, can't use it when my hands are a mess. Sheryl
Strength and Warmth,
Sheryl

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#9 Maddy07

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Posted 13 October 2007 - 02:51 PM

My cuticles tend to look horrible and yes will bleed too if I don't keep them oiled up. Nail salons, and even drug stores will sell good cuticle oils and I've tried a couple of them. I put on the oil about 3 times a day and it makes a world of difference. I've heard vit E will work well too. I hope he finds relief!

Maddy
Maddy
38 yr old mommy to 2 boys
Raynaud's, CREST diagnosed '96
Pulmonary Hypertension diagnosed Oct '07
GERD, Inefficient Esophageal Motility diagnosed Jan '09

#10 barefut

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Posted 13 October 2007 - 04:15 PM

Hi B's-wife,

Yes, I get the swelling, splitting and bleeding. They are so tiny but SO painful!! keeping them moisturized helps.

Have you guys tried a wax bath? They are SOOooooo GOOOoood!

Take Care,
Barefut

#11 emmie

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Posted 13 October 2007 - 04:16 PM

Nail problems.....ick! I have a couple that are growing downward. Also have a couple that keep splitting and another couple that just loose chunks. The cuticles have improved (but still not "normal") since I've been taking cellcept and my skin has improved.

Has anyone asked their dr. why the nails are growing downward? I have but no real answers! Would love to know! Thanks in advance.

emmie