Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Sleepiness, Headaches And Memory Loss


  • This topic is locked This topic is locked
13 replies to this topic

#1 barefut

barefut

    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 13 October 2007 - 04:34 PM

Does anybody else get suddenly slapped with sleepy tiredness?

One minute I think I'm doin' okay getting the kids ready for bed and then WHAM! I could just go out like a light. It's like my whole body says, "Okay, I'm done for the day" and flips the switch.

Scary - lastnight I don't remember putting my youngest to bed. I remember being SO sleepy and had a headache, I laid in my recliner with ice pack behind my neck at about 8pm and then next thing I know its 1am and my youngest is crawling up onto my lap.

I could not remember if he fell asleep on my lap as he does sometimes. But when we fall asleep together like that, I usually wake up within 1/2 hour with my arm asleep and carry him off to bed. I do not remember how or where he went to sleep!

NO I wasn't drinking! :P And I didn't take a sleeping pill or any other med that would make me so sleepy.

For about the past week and a half, at the end of the day and sometimes even before dinner I could just suddenly be done for the night.

I think its strange that it seems to hit me out of the blue and come on so suddenly. It's different from my fatigue, which I'll wake up with and it lasts all day.

Weird Barefut :blink:

#2 bookworm

bookworm

    Silver Member

  • Members
  • PipPipPipPip
  • 292 posts
  • Location:Texas

Posted 13 October 2007 - 05:27 PM

Hi, Barefut!
I've been doing this, too. My sleepiness comes on suddenly around 4 p.m. every day lately. It feels as if I have just shut down and I can barely put one foot in front of the other. If I'm watching TV or sitting down for anything else, I usually just doze on off! If I go ahead and go to bed, I'm usually out for the night. If I fight it and stay up, I sometimes get a second wind, although I don't really get peppy! I just get over falling over asleep!
This is different from my usual fatigue,too, and I don't know what it's about. I'm just glad I don't have little ones to take care of! Mine are all grown with families of their own.


Mary in Texas

#3 susie54

susie54

    Silver Member

  • Members
  • PipPipPipPip
  • 259 posts

Posted 14 October 2007 - 03:28 AM

Hi Barefut,

I might want to think with the headaches and the sleepiness, are you getting enough oxygen or retaining CO2> If it continues , I would tell your doctor and make sure your levels are OK. I have retained CO2 a few times and that is a symptom. Then it goes away.
On the other hand, I wear out at the end of the day so bad and memory could be clouded from fatigued. If I overdue that day, I get revenge in the evening. A small nap in the afternoon could help me.
Memory , I can't remember. (Just kidding) but I have REAL issues with this one. I am 53 so I chalk it up to age but I work my suduko and try to stay active. Susie54

#4 Margaret

Margaret

    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 996 posts
  • Location:Pennsylvania

Posted 14 October 2007 - 04:09 AM

Hi Everyone,

WOW......thanks for another " fill in " on your feelings!!! Gareth has gone to bed at 7:00 pm for the past year or so and sleeps through till 6:30-7:00 the next morning. I 'force' him to stay awake till 7:00 telling him it's too early to go to bed at 6 or 6:30!!! Lots of time I will need to go somewhere in the evening and it is just not possible because he's zonked out!!! Oh, well......now I know!!!

Take care, Everyone.
Margaret

#5 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,890 posts

Posted 14 October 2007 - 04:18 AM

I do get sleepy like you are describing, but unfortunately, I rarely go to sleep. I should hold the title for Insomniac of the Century. I just don't sleep. I'm lucky to get 2-3 hours a night.

I do battle HORRIBLE fatigue daily, which is hard to know if it's due to lack of sleep or disease - having said that, if I want to get much done for a given day it has to be in the morning prior to 1:00 in the afternoon. About that time each day "I'm done"
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 14 October 2007 - 12:25 PM

Barefut,
That is how I feel every day. It really frustrates me because I can't commit to anything because I never know when it will hit. It's overwhelming, but believe me, collapse don't try to fight it. The other night I got home from driving somewhere and I don't even remember driving. That really freaked me out!
Take care,
Nan

#7 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 14 October 2007 - 12:36 PM

I do. Some days I will be going along fine when I suddenly hit the wall. It is especially hard to plan a day out because we live a half hour away by bus from anywhere and I never know whether I will feel the need to crash. A few months ago, I spent some time explaining the spoon theory to my husband while we were lying awake in the middle of the night. A few days ago, he asked me if I would do something for him. After an hour, he said, "I'm not nagging, but could you please do that before you run out of spoons?" :)
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#8 aniwallar

aniwallar

    Senior Bronze Member

  • Members
  • PipPipPip
  • 92 posts
  • Location:Soeul, South Korea

Posted 14 October 2007 - 01:19 PM

My fatigue is so bad that I have to schedule things early in the morning. Just like Pamela, after 1:00p.m. I'm done. I have even made plans that later I have to cancel just because I want to go to bed. I just can't do anything when I get this tired.
I had also passed out and not know how it happened. What usually helps me is, like I said, take a nice nap in the afternoon.
This is something that makes me feel bad because I feel that I am not really doing anything with my life. My husband also critizises how inactive I am compared with the way I used to be before. Oh well, I need to sleep.
Memory loss (I almost forgot) is also a big thing here. I just forget....can't do anything about it.
Ani

#9 TJ903

TJ903

    Silver Member

  • Members
  • PipPipPipPip
  • 109 posts
  • Location:Merritt Island, Florida

Posted 14 October 2007 - 02:40 PM

Wow - thought I had another problem to deal with. The overwhelming urge to sleep was so bad I though I was narcoleptic. The headaches and memory loss are getting worse so any help there would be appreciated. Are their any special articles on how sclero affects the brain? Should would be a handy excuse at times. My hubby swears that it's all in my head (haha) but I'm so afraid that it's a symptom of something much worse. Then again I'm a pessimist.

Good luck with the whole sleepiness thing and I'm going to keep track of this thread if I can just stay awake......

#10 barefut

barefut

    Platinum Member

  • Topic Starter
  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 14 October 2007 - 03:22 PM

Jefa,

Thanks for the laugh! That tickled me. Your hubby sounds like a cute personality.

B

#11 nightfrog

nightfrog

    Bronze Member

  • Members
  • PipPip
  • 18 posts

Posted 14 October 2007 - 04:30 PM

good question tj I also would be interested in this

#12 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 15 October 2007 - 07:34 AM

Hi Everybody!

I wonder if maybe the sleepiness might have something to do with the change of seasons? It gets darker earlier, it's cooling down, so maybe our bodies are re-charging...whatcha think? :huh:

Bookworm, you mentioned that you start sinking about 4 PM... for me, it's usually 3 PM. Our internal clocks must be pretty close to the same :P

As for memory problems...I think about this alot, but all I can think is... It could be the meds, or it could be we don't sleep as well as we did pre-illess, leaving us wearing out sooner during the day. :unsure: I also believe that those with alot on their plate, young families to care for have drains on their energy.
If I stop and thinkl about what I do in a days' time, it makes sense... to me ;)

Well... that's my nickel's worth...
Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#13 WestCoast1

WestCoast1

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 554 posts

Posted 15 October 2007 - 06:26 PM

Ha-Jefa, your hubbie is a hoot! I hope that mine considers how many spoons I have left before he asks me to do one more thing :rolleyes:

I also get this instant fatigue. I usually will sit on the couch next to one of the kids and just fall over in a deep sleep for about 30 min. It sounds silly, but when it hits, it hits...I just hope I am not driving when it does. Thank goodness its not all that often.
*WestCoast*

********

#14 barefut

barefut

    Platinum Member

  • Topic Starter
  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 19 October 2007 - 06:13 AM

I think I'll hypothesize my own theory regarding how many brain cells I start the day with and how many I have left at the end of the day. I could call it the fork theroy...

I started this morning with no silverware at all!

More memory problems and its scaring me. :(

Before I got up off the couch this morning, my son was looking for his favorite sweatshirt to wear to school. I had brought in an armload of coats, sweatshirts, and blankets from the car yesterday and plopped them down by our shoe basket near the front door. I knew his sweatshirt was in the pile and I told him to look there.

He said what pile? I said the big pile of clothes right there. It was the size of a full load of laundry, I don't know how he could not be seeing it. He says, "I see nothing but carpet" I got up and looked and the pile was gone!

Now I KNOW my kids did not put it away! I stood there staring at the floor trying to remember putting that pile away and I could not. Granted, I had just woken up. But I STILL cannot remember putting away those clothes. My son found his sweatshirt in his room.

I am losing my mind and would sure love to find any info on how sclero may affect the brain! :blink: :(

B