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Biomarker for Diffuse Scleroderma skin has been discovered!


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Sct Update


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#1 GocartMoz

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Posted 19 October 2007 - 07:02 AM

I recently had my 7 month follow up at duke and I am happy to report nothing but progress. The itchiness is basically all gone, the skin is softening, PFT is stable and I am feeling much much much better. This is really the first time I can say that since the transplant in March and it sure feels good. While I still have joint stiffness with PT my mobility has even gotten much better. I am back to work, still only part time, but adding an hour to work each week. I get easily fatigued but with each day it gets better. In a few more weeks I hope to be back full time. With all the backslides I have had I was wondering whether I would ever be able to say the transplant was worth it. I think I am finally on my way. I am even putting weight back on, which on second thought may not be a great thing, but it feels good to eat again. Anyone who has been on TPN(IV nutrition) for an extended length of time will tell you how good it is to once again be eating real food. Well hopefully more good things are yet to come. I hope everyone else is having a great day.

Dave in FL

#2 oddone

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Posted 19 October 2007 - 08:49 AM

Dave:
Great to hear from you, and that everything is looking UP!!!!!!
Think of you often, hope that it continues in the right direction,
Thats awesome!!!!!
Oddone - Spouse - 38 yr old Husband diagnosed October 2006, Diffuse Systemic Scleroderma
Normal PFT(July 06), ECG(Nov/06)

#3 peanut

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Posted 19 October 2007 - 09:27 AM

Dave it is so great to hear your report. I'm glad to hear your recuperating and your symptoms are lessening.

Here's to your health and remission,
peanut

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my HMO makes me wear a helmet...

#4 nan

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Posted 19 October 2007 - 10:26 AM

Dave,
That is wonderful news! :D I am so happy for you and your family. Keep taking care of yourself and don't try to do too much.
Nan

#5 barefut

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Posted 19 October 2007 - 10:48 AM

Dave,

Thanks for the update. I think about you too and wonder how you are doing. I am so glad to hear good news. Glad your itching is gone!

Don't over do!
Take Care,
Barefut

#6 Sheryl

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Posted 19 October 2007 - 11:38 AM

Dave that is awesome news. I am so happy for you. Keep getting stronger and stronger. Please keep us informed on how you are doing from time to time. Others that may be going thru something similar can learn so much from you. I bet your buddies at work were glad to see you once again. You know your limits. Don't let anyone push you past them. I hope your life just gets better and better. Sheryl
Strength and Warmth,
Sheryl

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#7 Patty

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Posted 19 October 2007 - 02:03 PM

What a wonderful update! I am so happy to hear that things are on the up for you. I know its been a long road to get to this point but sounds like it very well was worth it ( knock on wood)
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#8 WestCoast1

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Posted 19 October 2007 - 03:43 PM

Hi Dave,
That is great to hear. I can only imagine how great it is to finally feel better! Keep taking great care of yourself and let us know how your progress continues.
*WestCoast*

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#9 bookworm

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Posted 19 October 2007 - 07:06 PM

What great news, Dave! Keep getting better and better.

Mary in Texas

#10 Bird Lady

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Posted 20 October 2007 - 02:59 AM

Dave Great news, soooo glad to hear you doing well.
Birdman
Hugs for All,

Julie (Bird Lady)

#11 Gidget

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Posted 20 October 2007 - 04:19 AM

Dave -- I am soo happy to hear that you are on the upside. Keep taking good care of yourself. Your family must be thrilled! Regards, Gidget

#12 Sweet

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Posted 20 October 2007 - 05:21 AM

Dave,

What wonderful news. You really are a trooper, and its reading posts like this that really give people hope and give people like me that does not have near as much involvement with this disease a chance to count my blessings. You've really been through a lot and I have to give you credit for always dealing with it straight on. I'm really happy for you and your family.

I hope by your next update you'll be feeling even better!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#13 LisaBulman

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Posted 20 October 2007 - 07:10 AM

Hi Dave,
Great news! Thank you for taking the time to update all of us here on your progress. It sounds like everyday you are getting stronger and stronger. please remember to listen your body.... when you are tired rest and if you can't add an hour to work one week, then wait until the next.

Hugs,
Lisa
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