Posted 26 October 2007 - 03:21 AM
If Life hands you lemons, make lemonade.
Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.
Posted 26 October 2007 - 06:59 AM
Gareth had no voice for almost 8 months due to the sclero....Nov - June. He could get a faint whisper out some times, but most of the time he didn't have the strenght to bother to try and communicate. The doctor said it could be from the restrictive lung disease or from his vocal cords tighening up due to the sclero. After 2 weeks on the Plaquenil, his voice was coming back again.
Take care, Everyone.
Posted 26 October 2007 - 08:32 AM
You know what I sound like. And yes, mine is from dear ole slcero!!! I have nodules on my vocal chords which, I'm told, started with the years of dry sclero cough and clearing my throat often. Because of the nodules, I feel like there is always something in my throat, so I'm always trying to clear it. Everytime I would cough or clear, it was slapping my chords against eachother, and over a long period of doing that caused the nodules. Kinda like calluses. For a long time I sounded like a teenage boy going thru puberty, my voice would squeak, and cut out on my all together. Now I think I sound like a chain smoker, or like Maude. You know that deep throaty raspy sound. I've asked my doctor about getting them off, and I think I'm gonna tackle that one after I get my knees injected. I don't know about you, but by the end of the day, I'm exhausted from just talking to my clients. I have to force my words out, and I'm short on breath as it is. I was told to try to avoid clearing my throat, and when I feel the need to do so, to take a drink of water instead. I was also given some speach therapy things to do, which I think is bunk. I hate hearing my own voice on videos. It's bad enough that I don't think I look like me, but now I don't even sound like me.
I wanna know where Me went!!! If anyone sees me out and about, please send me home!!!!
Ok, enough of that nonsense. Let me know what you find out about this.
Warm and Happy to you! Vee
Posted 26 October 2007 - 04:57 PM
My voice does the same thing. It will get froggy sounding and also very difficult for others to hear. I have to look directly at them and force more air out so I am louder. It's worse when my fatigue is worse--just like all the other symptoms no matter what the disease!
I don't have any answers as to why. I know I've noted this before, but it's never really been addressed. If you or anyone else gets any answers, be sure to report in! Thanks for bringing it up, Patty.
I've been looking for me for awhile now. How about this: if I see you out and about having a good old time, I'll send you home (but not till your good time is over, of course!) If you see me out there having a bit of fun, send me home once I'm done with the fun stuff, please.
PS. A little nonsense is good for us. Keeps us from taking ourselves too seriously!
Posted 27 October 2007 - 05:27 AM
During year one my voice dropped. Vee described it right on by saying it sounded like someone going through puberty. If I ate something cold, like a popsicle, I couldn't even talk. For some reason when the swallowing problem went away, my normal high squeaky voice came back. I think I liked the other voice better. I never could sing, so it doesn't matter anyway. I'm sure the little one doesn't notice the change and just enjoys your singing.
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Posted 27 October 2007 - 05:56 AM
If you're gonna wait for me to get done having a good time, You'll never get to send me home. I don't know when to quit or to shut up! Just ask Michele
I could never sing either, but at least I could get the words out. Now if I try to sing hardly no sound comes out, unless it's in a deep tone. And about Patty's baby not knowing whether or not she sounds good? My girls used to tell beg me to stop singing, and that was before I lost my voice ! I hope Gia is nicer to you, Patty! So now I sing on purpose just annoy them! Ahhhhh.....Mommydude revenge!
Warm and Happy to you! Vee
Posted 27 October 2007 - 07:14 AM
If I were expected to talk very long, I'd be in real trouble! My throat gets very fatigued. Also, if/when I happen to choke, it takes a while before I can talk without my throat hurting and sounding raspy. The same thing happens if I'm eating anything citrus. I love oranges, but I can't talk while I'm in the process of eating one, or I get the same effect.
As for singing... I always used to love to sing. I sang in several choirs and symphony chorale, but over the last 10 years, my range has gone from 2nd alto to first soprano... to 1st and 2nd alto and a stretch to 2nd soprano. I still love to sing, but it fatigues my throat and talking afterwards is really tough .
My thought is that some of this is a result of the GERD too.
Posted 27 October 2007 - 11:53 AM
Posted 27 October 2007 - 04:14 PM
Teenage boy, yes. And sometimes it will just disappear right in the middle of a sentence - usually when I'm on the phone with someone important and then I start clearing and coughing to get my voice back. Annoying and embarrassing.
I hate it when people think I'm sick because of my raspy, froggy voice. I have to say, no I'm not contagious!
I did hear not to clear my throat too - makes it worse. Hard not to!