Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

Are You Weird Like Me?


  • Please log in to reply
7 replies to this topic

#1 barefut

barefut

    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 27 October 2007 - 12:51 PM

Hi Guys,

I just have to complain a bit about my hip and lower back pain and ask if anyone has ever felt the weirdness I have been feeling.

I get a sensation of goose bumps in my hips and thighs only it feels like internal goose bumps. There is no change to my skin but I can feel the tingling coldness sort of trickling from my hips down the tops of my thighs.

Probably a pinched nerve I guess but it sure is weird! :blink:

Barefut :(

#2 Vee

Vee

    Silver Member

  • Members
  • PipPipPipPip
  • 215 posts

Posted 28 October 2007 - 03:57 AM

Hey B,

YES! I'm wierd like you, but sorry, I don't have that particular wierdness. Just pain where my hips are concerned. It seems to me like I've heard someone elst mention the "tingling" in their thighs before. I'm sure they'll chime in soon. Hope it's not a pinched nerve. Do you do back stretches? You know to separate the spine. I think they call it the cat stretch or something to that effect. Where you bend at the waste and round your back and then straighten up one vertebrae at a time. I do them in the shower, as the hot water seems to make stretching a lot easier.

Happy stretching!
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee

#3 barefut

barefut

    Platinum Member

  • Topic Starter
  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 28 October 2007 - 05:13 AM

Vee,

Thank you for not leaving me hanging alone in weirdness! :lol:

I do a spine stretch like that while I am blow drying my hair. If I exhale just right while relaxing, I hear my spine crack between my shoulder blades and it feels a little better.

I have been having daily headaches so I've been doing the spine stretch couple x's/day and I scheduled a massage with our town's school of massage. 90 minutes for $30! Halloween morning I get a massage! That will help get me through the day (and trick-or-treating at night)

I have yet to find a good stretch for my hips. I wish I had gravity boots to stretch my spine - or that inversion table I've seen in expensive catalogs.

My lower, lower back (near tailbone) is messed up from a work injury 10 years ago. I had a bulging disc and it's never been normal since.

So, I can't tell if my lower back is messing with my hips or vice versa or if they're seperate things acting up at the same time. Either way, I'm walking gingerly these days.

Yesterday I drove 1/2 hour to the pumpkin patch and sitting that long was torture.

Better today.

Thanks for listening to me complain........

Barefut

#4 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 28 October 2007 - 05:25 AM

Barefut,
A stretch I do for my hips and lower back is to lay flat on the floor (see later comment), bend one leg and bring it bent up to the chest (ha ha), hold for a few seconds. The other leg should be straight. Then form a 90 degree angle with the thigh and the lower leg (the thigh being perpendicular to the floor). SLOWLY twist at the waist by bringing the raised leg over the straight leg. Only go as far as you feel comfortable. You should feel a stretch through the hip and around to the lower back. (A yoga instructor taught me this one when I was complaining about hip pain)

At first I couldn't twist very far (which didn't matter), but the more I do it, the further I can go. There is one BIG problem however, I have to do this first thing in the morning before I eat or drink anything otherwise I'm unable to lay flat without reflux. UGH! The second problem is getting up off the floor. :blink: I usually row over to my stomach and work my way up to a bent standing position where I can "roll" up as Vee described.

Try it - you might like it. :)

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#5 barefut

barefut

    Platinum Member

  • Topic Starter
  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 28 October 2007 - 05:31 AM

Janey,

Thanks! I will!

B

#6 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 28 October 2007 - 06:50 AM

Yes, I'm weird like you!

I have so many problems with my hip/back that it's hard to figure it out though. My hips/back/shoulders and neck is what causing me fairly intense pain daily. Last night I cried myself to sleep after taking pain pills and muscle relaxers.....

I do have a fair amount of arthritis and degenerative changes and they chalk it up to that. When I get the feeling you are describing, then the next turn of events are usually going to get adjusted or acupuncture trying to prevent further intense pain.

Sorry I know this probably didn't really help you, but thought I'd share.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#7 barefut

barefut

    Platinum Member

  • Topic Starter
  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 28 October 2007 - 07:52 AM

Sweet,

I called my insurance company Friday to see if they covered acupuncture and they do! 12 visits/year.

I see my general practitioner with my youngest tomorrow, for his possible vitiligo and to get my flu shot. I will ask for a referral and go for an appt. ASAP. I have always wanted to try acupuncture. I just know it will help.

I have my 2nd massage ever on Wed. Do you still have regular massages? I hope it helps you.

So sorry you are in so much pain.

Take Care,
Love,
Barefut

#8 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 28 October 2007 - 08:48 AM

Hey Barefut,

I'm glad you're going to give acupuncture a try. It does really help me. Yep, still getting massages, but my therapist has been in the middle of building a new home with a new spa in it, so my appointments have been sporadic. I do see her this Thursday though, I can't wait!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)