Posted 29 October 2007 - 02:37 AM
My Raynaud's is now working overtime & the temperature is still not that cold, I've been wearing gloves all summer but now I'm finding that even sheepskin mitts are no use. My hands are constantly icy cold & attacks are very frequent infact the slightest change in temperature & my hands react. They never seem to get a normal blood supply any more & the pain is awful.
I was taking Nifedipine but these gave me dreadful hot flushes/sweating so consultant told me to stop taking them which I have so no hot flushes but other symptoms are much worse. So rang rheumatologist 's secretary & she spoke to him for me & he's said to try Felodipine (I think it's Norvasc in the states) so she will fax letter to general practitioner & I see him on Wednesday.
What dosages do people take?
Do you find it helps?
Is the pain I get from the SSc or just the Raynaud's?
My hands especially the back of them & finger tips are always cold & I'm getting horrendous pain in the thumb joints in particular, does anyone else get this?
Sorry about the moan but feeling pretty fed up with constant pain & feeling cold.
Posted 29 October 2007 - 04:40 AM
Re the pains in the finger joints, I have a problem periodicaly with arthritis type pain in just the left thumb but usually resolves itself after a few day. Its obviously something you need to ask your Dr about.
I don't know about you but I actually find it harder to keep my hands warm when I'm inside than when I'm out. I have some fingerless fleece gloves that help a little but still get long periods when hands are very icy. Outside I use handwarmers when the weather gets really cold -keep your hands really toasty. Now all the winter stuff is in the shops I went looking for some mittens, as they keep your hands warmer than gloves but haven't had any success yet!
Hope you get the problem sorted a bit
Posted 29 October 2007 - 04:43 AM
Barbara aka relicmom1
Posted 29 October 2007 - 05:45 AM
Warm wishes ~~~Tammy~~~
Posted 29 October 2007 - 09:09 AM
I have had an Iloprost infusion but it didn't work very well at all.
I just got fobbed off when I mentioned the pains to my general practitioner he said its just the Raynaud's! But that doesn't make them swell & get hot at the joint does it?
My skin does itch & gets very dry & cracks so I use plenty of hand cream, I found the sort that is reccomended for fishermen quite good to use.
Tammy I must admit I don't wear a hat that often but use the hood to my duvet jacket which is very warm but doesn't always stay on when it's windy, it's because my hair is so fine that I look like I've no hair which is not so good when I'm working.( pur vanity I know)
I have two duvet jackets which have down filling with hoods & they're lovely & soft but very warm. I wonder if you can get mitts with down fillings?
Posted 29 October 2007 - 12:54 PM
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International Scleroderma Network (ISN)
Posted 29 October 2007 - 05:21 PM
I take Nifedipine ER 30mg. Normally I am OK, but when temperature starts below 60 degrees F, I have difficulty. I am diabetic and I would not be able to squeeze out a drop of blood from my any fingers for glucose testing and it starts paining. Nifedipine definitely helps.
Thanks for pointing out side effects of the drugs. I have severe insomnia (one of the side effect of the drug), but did not make any difference after stopping the drug.
Also Norvasc, Nicardipine and Nifedipine have very similar side effects. All three drugs are from same class â€“ calcium channel blocker.
May be some one on the board can point out differences. I am very sensitive to side effects and I am going to discuss this with my rheumatologist next time. He was reluctant to start Nifedipine unless I have to.
Posted 30 October 2007 - 10:02 AM