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Scleroderma Webcast Tue, Oct 30th, 12:00 Ct


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#1 Shelley Ensz

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Posted 29 October 2007 - 02:14 PM

Scleroderma Webcast!

You are invited to attend a Scleroderma webcast Tuesday, October 30, 2007 from 12:00 pm – 1:00 pm Central Time at www.healthradio.net. You can listen live at www.healthradio.net, call in live at 877.711.5611 or 877.711.5211.

Dr. Art Theodore, is a nationally recognized expert with special interests in systemic sclerosis and interstitial lung disease. Dr. Theodore is Associate Professor of Medicine, Director of Medical Intensive Care Units, Medical Director of Respiratory Therapy, and Director of Medical Education Pulmonary and Critical Care Medicine at Boston University Medical Campus.

If you have scleroderma, know of someone who has this illness, or are interested in learning more about this illness you don’t want to miss this special presentation. Call in with your questions live! Posted 10-29-07. PatientPower.

Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#2 Patty

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Posted 29 October 2007 - 02:29 PM

Thanks Shelley! I hope to be able to catch this. This is so awesome!
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#3 Shelley Ensz

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Posted 30 October 2007 - 04:09 AM

Just a friendly reminder for this webcast.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#4 Clementine

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Posted 30 October 2007 - 04:15 AM

I tried to log on to the webcast an hour early, just to check it out, but I cannot get on to the site. Has anyone else tried?
Jenjen

#5 Shelley Ensz

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Posted 30 October 2007 - 04:31 AM

Yes, I am also getting the message that the server is too busy and to try again later. But, no worry -- they are taping the event and it will be available for us to watch after it is over, as well.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#6 Shelley Ensz

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Posted 30 October 2007 - 04:41 AM

I should also point out that we are trying to get into the site a few hours ahead of time. The webcast isn't until noon Central Time today. So there is a good chance the crowd could clear out before then!

For those receiving this forum message by email only, here is the webcast we are discussing:

You are invited to attend a Scleroderma webcast Tuesday, October 30, 2007 from 12:00 pm – 1:00 pm Central Time at www.healthradio.net. You can listen live at www.healthradio.net, call in live at 877.711.5611 or 877.711.5211.

Dr. Art Theodore, is a nationally recognized expert with special interests in systemic sclerosis and interstitial lung disease. Dr. Theodore is Associate Professor of Medicine, Director of Medical Intensive Care Units, Medical Director of Respiratory Therapy, and Director of Medical Education Pulmonary and Critical Care Medicine at Boston University Medical Campus.

If you have scleroderma, know of someone who has this illness, or are interested in learning more about this illness you don’t want to miss this special presentation. Call in with your questions live!
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#7 Clementine

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Posted 30 October 2007 - 04:43 AM

I was able to get onto the site but now I do not see where the Dr. is scheduled.
Tangie

#8 Shelley Ensz

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Posted 30 October 2007 - 05:12 AM

They've had some continuing problems with this, so the webcast is also going to be shown at:

http://www.patientpower.info/

at 10AM Pacific Time (12AM Central, 11AM Eastern)
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#9 Patty

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Posted 30 October 2007 - 06:07 AM

Shelley its at 1 pm est time not 11 am.
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#10 Shelley Ensz

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Posted 30 October 2007 - 12:07 PM

Hi Patty,

Oh whoops! Thanks for catching the time zone math.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#11 Patty

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Posted 30 October 2007 - 01:15 PM

hey Shelley

No Prob on ther castching of ther time thing. It is hard to keep track of the times across the country.

Did you listen to it and what were your thoughts on it. It seemed to me it was mostly about Lung issues.
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#12 Shelley Ensz

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Posted 30 October 2007 - 02:35 PM

Scleroderma Webcast Replay. Dr. Art Theodore is a nationally recognized expert with special interests in systemic sclerosis and interstitial lung disease from Boston University Medical Campus. If you have scleroderma, know of someone who has this illness, or are interested in learning more about this illness you don’t want to miss this special presentation. PatientPower.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#13 WestCoast1

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Posted 30 October 2007 - 04:36 PM

Hi Shelly,
Thanks for the link, that was a great web cast! I am thinking about sending it to help my family members understand what Scleroderma really is.
*WestCoast*

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#14 jefa

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Posted 30 October 2007 - 11:28 PM

Thanks, Shelley. It was very interesting, though it could have done with a little less interviewer and more interviewee. Still, I thought given the length of the broadcast, they covered quite a lot of ground. The call in and email questions were good as well. Was that our Patty? I noticed that ISN got a nice plug at the end.
Warm wishes,
Jefa

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#15 oddone

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Posted 31 October 2007 - 08:10 AM

This was a great interview, hope everyone continues to get the word out about Scleroderma.
The more people that have knowledge of Scleroderma, the more likely there will be funding and research dedicated to finding a cure.
Oddone - Spouse - 38 yr old Husband diagnosed October 2006, Diffuse Systemic Scleroderma
Normal PFT(July 06), ECG(Nov/06)

#16 LisaBulman

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Posted 31 October 2007 - 09:12 AM

Thanks Shelley!

I just listened and it is great that the word is getting out! It just so happens that this is where I go for my care. :) Patty was that you??

Hugs,
Lisa
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#17 barefut

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Posted 31 October 2007 - 12:10 PM

Thank you Shelley,

I have forwarded this to all my friends and family.

Barefut

#18 Patty

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Posted 31 October 2007 - 12:14 PM

Yes I am embarrassed to say it was me. I got nervous and didn't get my question out as I had planned so I didn't get the answer I was really looking for. I never expected to get through!!
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#19 janey

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Posted 31 October 2007 - 12:37 PM

Patty,
You did great! Thanks for taking the time and having the patience to call in. Personally, I thought you did a great job with your question, but he did a questionable job in answering it. He did that a couple of times where he really didn't answer the question that was asked. But the whole radio talk show, call in thing is so hard to do from both the caller and the talker - so all in all a GREAT JOB all around.

Big Hugs,
Janey Willis
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